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April 18, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Become a rare disease mythbuster during NORD’s Living Rare, Living Stronger Patient & Family Forum

Posted at April 4, 2019 10:00 am by Christina Jensen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum is a conference in which patients and caregivers can gain insights and practical tools for living their best lives with rare diseases, with tracks for newly diagnosed patients, long-term patients, caregivers, physicians and medical students. Download the full agenda now for a… Read More

April 9, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Living Rare, Living Stronger full agenda with speakers now available

Posted at April 4, 2019 08:52 am by Christina Jensen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of early bird pricing! Need more enticing?

Here are 10 reasons… Read More

March 12, 2019

TOPIC: Events, Featured News, Press Releases

NORD Announces Honorees for 2019 Rare Impact Awards

Posted at March 3, 2019 09:35 am by Christina Jensen

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

The Rare Impact Awards is an event hosted… Read More

March 6, 2019

TOPIC: Events, Featured News, Get Involved, Patient Stories, Patients & Members, Rare Disease Day

Rare Disease Day 2019 Notes and Successes

Posted at March 3, 2019 04:38 pm by Christina Jensen

This year, NORD launched the #ShowYourStripes awareness campaign in time for Rare Disease Day (RDD) with a goal of increasing attention on rare diseases and engaging our community. Judging by the number of events, attendance at events, extensive media coverage, robust social media engagement and beyond, NORD is very proud to say that Rare Disease Day 2019 was a… Read More

January 16, 2019

TOPIC: Advocacy, Events, Featured News, Patients & Members, Press Releases, Rare Disease Day

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Posted at January 1, 2019 10:45 am by Christina Jensen

Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for people to literally and figuratively “show their stripes” in… Read More