Scroll
To Top

January 16, 2019

TOPIC: Advocacy, Events, Featured News, Patients & Members, Press Releases, Rare Disease Day, Sticky Posts for Homepage

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Posted at January 1, 2019 10:45 am by Christina Jensen

Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for people to literally and figuratively “show their stripes” in… Read More

December 20, 2018

TOPIC: Advocacy, Events, Featured News, Get Involved, Rare Disease Day

Rare Disease Day 2019 is Only 10 Weeks Away!

Posted at December 12, 2018 09:35 am by Christina Jensen

Every year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day® (RDD), takes place on the last day of February each year. The next RDD will fall on February 28, 2019.

Together, we can raise the profile of rare diseases and the issues that our community… Read More

December 17, 2018

TOPIC: Events, Featured News, Patients & Members

The 2019 Rare Impact Awards will take off at Space Center Houston, Saturday, June 22!

Posted at December 12, 2018 01:04 pm by Laura Mullen

This June in Houston, Texas, the 2019 Living Rare, Living Stronger | NORD Patient & Family Forum will bring the rare community together with physicians, medical students and allied health

professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding -… Read More

September 20, 2018

TOPIC: Events, Featured News, Get Involved

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Posted at September 9, 2018 10:36 am by Christina Jensen

Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure to save your seat at the table by registering for the Summit and choosing your lunch option now! Lunch & Learn sessions have limited seating and will be first-come,… Read More

September 12, 2018

TOPIC: Advocacy, Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Posted at September 9, 2018 04:35 pm by Christina Jensen
Read More