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March 21, 2018

TOPIC: Advocacy, Events, Featured News

National Organization for Rare Disorders (NORD) Announces Honorees for 2018 Rare Impact Awards

Posted at March 3, 2018 11:30 am by Christina Jensen

Washington, D.C., March 21, 2018—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 35th Anniversary Celebration presenting the Rare Impact Awards on May 17 in Washington, D.C.

The Rare Impact Awards is an annual event hosted by NORD, the leading independent nonprofit organization representing the 30 million Americans with… Read More

March 7, 2018

TOPIC: Advocacy, Events, Featured News, Get Involved, Patients & Members

Another Successful Rare Disease Day®

Posted at March 3, 2018 12:23 pm by Christina Jensen

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018.  On this day, everyone RDD-LOGO-18-stickycomes together globally to bring attention to all 7,000 rare diseases that combined affect 30 million Americans–or 1 in 10 of us–and millions more… Read More

January 18, 2018

TOPIC: Events, Get Involved, Medical

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Posted at January 1, 2018 11:26 am by Christina Jensen

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader, Harjot Randhawa, was in attendance and wrote the excellent article below… Read More

January 9, 2018

TOPIC: Events, Get Involved

Nominations for the Rare Impact Awards Close Friday, January 12

Posted at January 1, 2018 03:08 pm by Christina Jensen
Do you know a person or company making a difference in the fight against rare diseases? We want to hear about them! Submit a nomination for the 2018 Rare Impact Awards by this coming Friday, January 12Read More

December 21, 2017

TOPIC: Advocacy, Events, Get Involved, Sticky Posts for Homepage

Join Us for Rare Disease Day®

Posted at December 12, 2017 10:05 am by Christina Jensen
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