The time is now…
- To address affordability for patients,
- To drive progress with a unified voice,
- To understand the role of advancing technology in rare disease, and
- To register for the 2019 NORD Rare Summit!
In 2019, we believe “The Time is Now“ to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with… Read More
June 27, 2019
TOPIC: Events, Get Involved, Patients & Members
Posted at June 6, 2019 09:32 am by Christina Jensen
We would like to extend our sincerest thanks to all those who joined us during the Living Rare, Living Stronger NORD Patient & Family Forum, June 21-23 in Houston. Over 500 individuals came out for a weekend filled with learning, sharing, bonding and fun. Our hope is that this event provided the tools, information and support… Read More
June 17, 2019
TOPIC: Events, Featured News, Get Involved, Patients & Members
Posted at June 6, 2019 09:21 am by Christina Jensen
NORD’s Living Rare, Living Stronger Patient & Family Forum is coming us this weekend on June 21-23 in Houston, TX. For those not joining us in-person, please join us online! You can catch select content on Facebook Live – including the Rare Impact Awards, Saturday, June 22, 7:30p.m. CST!
Tune in for… Read More