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April 9, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Living Rare, Living Stronger full agenda with speakers now available

Posted at April 4, 2019 08:52 am by Christina Jensen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of early bird pricing! Need more enticing?

Here are 10 reasons… Read More

March 12, 2019

TOPIC: Events, Featured News, Press Releases

NORD Announces Honorees for 2019 Rare Impact Awards

Posted at March 3, 2019 09:35 am by Christina Jensen

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

The Rare Impact Awards is an event hosted… Read More

March 6, 2019

TOPIC: Events, Featured News, Get Involved, Patient Stories, Patients & Members, Rare Disease Day, Sticky Posts for Homepage

Rare Disease Day 2019 Notes and Successes

Posted at March 3, 2019 04:38 pm by Christina Jensen

This year, NORD launched the #ShowYourStripes awareness campaign in time for Rare Disease Day (RDD) with a goal of increasing attention on rare diseases and engaging our community. Judging by the number of events, attendance at events, extensive media coverage, robust social media engagement and beyond, NORD is very proud to say that Rare Disease Day 2019 was a… Read More

January 16, 2019

TOPIC: Advocacy, Events, Featured News, Patients & Members, Press Releases, Rare Disease Day

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Posted at January 1, 2019 10:45 am by Christina Jensen

Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for people to literally and figuratively “show their stripes” in… Read More

December 20, 2018

TOPIC: Advocacy, Events, Featured News, Get Involved, Rare Disease Day

Rare Disease Day 2019 is Only 10 Weeks Away!

Posted at December 12, 2018 09:35 am by Christina Jensen

Every year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day® (RDD), takes place on the last day of February each year. The next RDD will fall on February 28, 2019.

Together, we can raise the profile of rare diseases and the issues that our community… Read More