Slogan: Join us in making the voice of rare diseases heard
As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited to announce the theme for Rare Disease Day 2016 with EURORDIS, our partner and the… Read More
September 8, 2015
TOPIC: Patients & Members, Events
Posted at September 9, 2015 02:30 pm by Jennifer Huron
The Cystinosis Research Network (CRN), a 501(c)(3) charitable organization and NORD member, created the first-ever “Dream, Achieve, Inspire” art exhibit prepared entirely by patients with cystinosis, a rare, genetic-metabolic disease. Paintings, poems, sculptures, dance, and photography from 107 individuals with cystinosis covering 30 countries came together under Exhibit Chairperson, Katie Larimore.
The art exhibit opened… Read More