Scroll
To Top

June 27, 2019

TOPIC: Events, Get Involved, Patients & Members

NORD’s 2019 Living Rare, Living Stronger Weekend Highlights

Posted at June 6, 2019 09:32 am by Lisa Sencen

We would like to extend our sincerest thanks to all those who joined us during the Living Rare, Living Stronger NORD Patient & Family Forum, June 21-23 in Houston. Over 500 individuals came out for a weekend filled with learning, sharing, bonding and fun. Our hope is that this event provided the tools, information and… Read More

June 17, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Catch Living Rare Forum Plenaries and The Rare Impact Awards on Facebook Live!

Posted at June 6, 2019 09:21 am by Lisa Sencen

NORD’s Living Rare, Living Stronger Patient & Family Forum is coming us this weekend on June 21-23 in Houston, TX. For those not joining us in-person, please join us online! You can catch select content on Facebook Live – including the Rare Impact Awards, Saturday, June 22, 7:30p.m. CST!

Tune in for… Read More

April 18, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Become a rare disease mythbuster during NORD’s Living Rare, Living Stronger Patient & Family Forum

Posted at April 4, 2019 10:00 am by Lisa Sencen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum is a conference in which patients and caregivers can gain insights and practical tools for living their best lives with rare diseases, with tracks for newly diagnosed patients, long-term patients, caregivers, physicians and medical students. Download the full agenda now for a… Read More

April 9, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Living Rare, Living Stronger full agenda with speakers now available

Posted at April 4, 2019 08:52 am by Lisa Sencen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of early bird pricing! Need more enticing?

Here are 10 reasons… Read More

March 12, 2019

TOPIC: Events, Featured News, Press Releases

NORD Announces Honorees for 2019 Rare Impact Awards

Posted at March 3, 2019 09:35 am by Lisa Sencen

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

The Rare Impact Awards is an event hosted… Read More