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May 31, 2018

TOPIC: Events, Get Involved

A Celebration of NORD’s 35th Anniversary

Posted at May 5, 2018 11:19 am by Christina Jensen

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting the Rare Impact Awards. 

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May 21, 2018

TOPIC: Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research

Save the Date for NORD’s 2018 Rare Summit

Posted at May 5, 2018 03:36 pm by Christina Jensen

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.


Rare Diseases &… Read More

May 10, 2018

TOPIC: Events, Featured News, Get Involved

Watch LIVE: NORD’s 35th Anniversary & Rare Impact Awards Celebration

Posted at May 5, 2018 10:24 am by Christina Jensen
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NORD’s 35th Anniversary Celebration presenting the Rare Impact Awards is only one week away, happening next Thursday, May 17, at the Andrew W. Mellon Auditorium in Washington, D.C. If you are not able to attend in person, please join us for a special webcast of the event using Facebook Live!

How to Watch:

  1. On Thursday, May 17 at… Read More

April 25, 2018

TOPIC: Events, Featured News, Get Involved, Medical, Patient Stories, Patients & Members

Robert Campbell, Jr., M.D.: 2018 Lifetime Achievement Award Honoree

Posted at April 4, 2018 01:24 pm by Christina Jensen

Dr. Robert M. Campbell, Jr. is Director of the Center for Thoracic Insufficiency Syndrome (CTIS) and an Attending Physician in the Division of Orthopaedic Surgery at Children’s Hospital of Philadelphia (CHOP). He is best… Read More

April 25, 2018

TOPIC: Advocacy, Featured News, Get Involved, Patient Stories, Patients & Members

Estelle Benson, Founder of GBS|CIDP Foundation International: Abbey S. Meyers Leadership Award Honoree

Posted at April 4, 2018 01:15 pm by Christina Jensen

The GBS|CIDP Foundation International, one of the first member organizations of NORD, works towards a future when no one with Guillain-Barre syndrome… Read More