March 20, 2018
TOPIC: Advocacy, Featured News, Get Involved, Patients & Members, Press Releases
NORD Rare Action Network™ 2018 State Report Card
Posted at March 3, 2018 09:13 am by Christina Jensen
March 7, 2018
TOPIC: Advocacy, Events, Featured News, Get Involved, Patients & Members
Another Successful Rare Disease Day®
Posted at March 3, 2018 12:23 pm by Christina Jensen
Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018. On this day, everyone 
comes together globally to bring attention to all 7,000 rare diseases that combined affect 30 million Americans–or 1 in 10 of us–and millions more… Read More
March 5, 2018
TOPIC: Get Involved
35 Ways to Celebrate the 35th Anniversary of NORD
Posted at March 3, 2018 10:31 am by Jennifer Huron
This May, the National Organization for Rare Disorders (NORD) will turn 35. This nonprofit organization is the leading advocate for patients with rare diseases. There are 30 million Americans with rare diseases—one-tenth of the population—making it an issue that touches nearly every U.S. household in one way or another. Here are 35 interesting ways to get involved to celebrate… Read More
January 18, 2018
TOPIC: Events, Get Involved, Medical
Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa
Posted at January 1, 2018 11:26 am by Christina Jensen
During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader, Harjot Randhawa, was in attendance and wrote the excellent article below… Read More
January 16, 2018
TOPIC: Advocacy, Get Involved, Press Releases
NORD Launches 7,000 Mile Rare Movement
Posted at January 1, 2018 09:22 am by Laura Mullen
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