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April 9, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Living Rare, Living Stronger full agenda with speakers now available

Posted at April 4, 2019 08:52 am by Christina Jensen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of early bird pricing! Need more enticing?

Here are 10 reasons… Read More

March 20, 2019

TOPIC: Get Involved, Patients & Members, Sticky Posts for Homepage

Hear from NORD’s registry community

Posted at March 3, 2019 11:03 am by Christina Jensen

During the 2018 Rare Diseases & Orphan Products Breakthrough Summit, NORD spoke with its IAMRARE registry users to get their thoughts on how their patient registries are benefiting their communities and how they are able to use the data. See the videos below and on our Youtube channel here.