September 19, 2017
TOPIC: Advocacy, Featured News, Get Involved, Patients & Members, Press Releases
Posted at September 9, 2017 01:20 pm by Christina Jensen
The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal and replace the Affordable Care Act (ACA):
“The Senate is currently considering a proposal put forward by Senators Graham, Cassidy, Heller, and Johnson that would repeal and replace the Affordable… Read More
September 18, 2017
TOPIC: Advocacy, Get Involved, Sticky Posts for Homepage
Posted at September 9, 2017 10:52 am by Christina Jensen
The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.
Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients were denied coverage to vital therapies and specialists, and… Read More
August 31, 2017
TOPIC: Featured News, Get Involved, Medical, Patients & Members
Posted at August 8, 2017 09:33 am by Christina Jensen
August 15, 2017
TOPIC: Advocacy, Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Sticky Posts for Homepage
Posted at August 8, 2017 09:49 am by Christina Jensen
It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare disease stakeholders come together to advance the dialogue on these… Read More
July 20, 2017
TOPIC: Advocacy, Featured News, Get Involved
Posted at July 7, 2017 04:32 pm by Paul Melmeyer
A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.
As part of our “Days of Action to Protect Your Healthcare Coverage” campaign, we want to be sure that you are up-to-date on the latest news in Washington D.C.
Right now, Majority Leader McConnell and… Read More