Published March 3, 2020 by NORD
NORD is proud to welcome Sing Me a Story to the upcoming 2020 Living Rare, Living Stronger Forum in Cleveland, Ohio, where the ideas of children living with rare diseases will be turned into song! This opportunity …
Read morePublished February 27, 2020 by NORD
Dance, lip-sync and comedy video creator Mark Anastasio spoke in a somewhat different tone in a recent Tik Tok video for his 6.3 million followers. The content of the video? …
Read morePublished February 26, 2020 by NORD
This year, NORD has developed a brief video for Rare Disease Day featuring rare patients, caregivers and supporters sharing their thoughts on the importance of the day and relaying the …
Continue reading “NORD Debuts Rare Disease Day 2020 Video”
Read morePublished December 2, 2019 by NORD
Do you have questions about gene editing and how it may advance the treatment of people with rare diseases? Much has been written lately about the promise of CRISPR and …
Continue reading “What Questions Would You Ask About Gene Editing?”
Read morePublished August 21, 2019 by NORD
Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition®, which …
Continue reading “Mark Your Calendars – October 1 is Rare Cancer Day!”
Read morePublished July 11, 2019 by NORD
NORD and the Foundation for Rare Blood Diseases (SZB) invite you to register for an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, …
Read morePublished July 8, 2019 by NORD
NORD’s Educational Initiatives team spoke with Alexander Pham, a Massachusetts College of Pharmacy and Health Sciences student and NORD Students for Rare Chapter Leader. In this interview, Alexander talks about his …
Continue reading “Featured Student: Alexander Pham”
Read morePublished July 2, 2019 by NORD
The time is now…register today!
Read morePublished July 1, 2019 by NORD
NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters. Emergency relief funds may be requested once per household/per …
Continue reading “Help for rare disease patients impacted by Hurricane Dorian”
Read morePublished June 27, 2019 by NORD
We would like to extend our sincerest thanks to all those who joined us during the Living Rare, Living Stronger NORD Patient & Family Forum, June 21-23 in Houston. Over …
Continue reading “NORD’s 2019 Living Rare, Living Stronger Weekend Highlights”
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