Published November 14, 2017 by NORD
Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with …
Read morePublished October 26, 2017 by NORD
View the full documentary. Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is …
Continue reading “NORD Releases New Documentary called “Good Morning Peyton””
Read morePublished September 26, 2017 by NORD
Stay informed on what NORD is doing to address the Affordable Care Act for rare disease patients.
Read morePublished September 19, 2017 by NORD
The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal …
Continue reading “NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan”
Read morePublished August 31, 2017 by NORD
Hurricane Harvey has left thousands rid of their belongings and forced out of their homes. For individuals living with a rare disease, the impact of such natural disasters can be …
Continue reading “Downloadable Hurricane Harvey Emergency Relief Resources”
Read morePublished August 15, 2017 by NORD
Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.
Read morePublished July 20, 2017 by NORD
A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved. As part of our “Days of Action …
Continue reading “The BCRA and Healthcare Reform: NORD’s Latest Update”
Read morePublished July 20, 2017 by NORD
Washington, D.C. July 19, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced two keynote …
Read morePublished June 29, 2017 by NORD
Update: June 29, 2017–Today, H 239, a bill that would establish a Rare Disease Adviosry Council and provide Pennsylvania’s 1.2 million rare disease patients with a voice in the state …
Continue reading “Rare Disease Advisory Council Bill Moves through Pennsylvania House”
Read morePublished June 27, 2017 by NORD
Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
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