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May 30, 2014

TOPIC: Medical, Patients & Members, Industry

Images from the Portraits of Courage Celebration

Posted at May 5, 2014 02:52 pm by admin

NORD’s Portraits of Courage Celebration on May 8, 2014, highlighted the many ways in which patients and caregivers display great dignity and grace in living with challenging rare diseases. Patients and families featured in the Portraits of Courage gallery providing an inspiring presence at the event.

We thank our sponsors and supporters who made it all possible, and extend congratulations… Read More

February 28, 2014

TOPIC: Featured News, Patients & Members, Industry

FDA Creates New Web-Based Educational Tool About the Agency

Posted at February 2, 2014 05:08 pm by Mary Dunkle

The Food and Drug Administration’s Office of Orphan Products Development (OOPD), in collaboration with the FDA Center for Drug Evaluation and Research (CDER), has launched a web-based educational tool for rare disease patients, advocacy groups, researchers and industry on various FDA-related topics. (more…)

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