The Will to Live and the Strength for a Cure
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…
Read morePublished December 18, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about…
Read morePublished November 25, 2014 by NORD
Join us on May 2015 in Washington DC to celebrate the successes of the rare disease community.
Read morePublished November 25, 2014 by NORD
NORD launches the nation’s only Rare advocacy network.
Read morePublished October 7, 2014 by NORD
On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …
Continue reading “Taking Action for ACD”
Read morePublished September 25, 2014 by NORD
It’s truly amazing to hear everyone’s unique personal story on why medical research is important to them. Whether it’s a parent whose son or daughter is living with a rare …
Continue reading “Medical Research Should Be Everyone’s Priority”
Read morePublished September 16, 2014 by NORD
Editor’s note: The following blog is being published to highlight Blood Cancer Awareness Month and MPN Awareness Day. I was diagnosed with essential thrombocythemia (ET) at age 16 after …
Continue reading “Living with Blood Cancer”
Read morePublished September 2, 2014 by NORD
Carmina Taylor of Penllyn, Penn., lost her son, Dorien, to sudden cardiac arrest at age 17
Read morePublished August 18, 2014 by NORD
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened …
Continue reading “The Will to Live and the Strength for a Cure”
Read morePublished June 17, 2014 by NORD
On behalf of the millions of Americans who have diseases with little or no treatment, the National Organization for Rare Disorders (NORD) has submitted a seven-step plan to the 21st …
Continue reading “NORD Recommendations for Advancing Drug Discovery, Development, and Delivery”
Read morePublished June 4, 2014 by NORD
Biologic therapies have been lifesaving and life changing for the patients we represent – more than 30 million Americans with more than 7,000 rare diseases. Literally, hundreds of thousands of …
Continue reading “Thoughtful Biosimilars Policy Is Best Way to Ensure Optimum Patient Outcomes”
Read moreBy continuing to use this website, you agree to the Terms & Conditions and Privacy Policy.