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September 10, 2019

TOPIC: Featured News, Medical

Students for Rare Featured Student: Jaime Tan

Posted at September 9, 2019 11:14 am by Laura Mullen

NORD’s Educational Initiatives team spoke with Jaime Tan, Central Michigan University medical student and NORD Students for Rare Chapter Leader. In this interview, Jaime talks about how he came to be involved in the rare community. For more information on NORD’s student programs, click here.

  1. Tell us a little bit about yourself! Where are you from?

My name is… Read More

July 9, 2019

TOPIC: Featured News, Medical, Patients & Members, Research

New Video on PTLD Added to NORD Rare Disease Video Library

Posted at July 7, 2019 08:34 am by Lisa Sencen

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has added a new video to the NORD Rare Disease Video Library, a resource featuring videos on rare diseases and related topics for patients, caregivers, students, professionals and the public.

The… Read More

July 2, 2019

TOPIC: Featured News, Medical, Patients & Members, Advocacy, Industry, Sticky Posts for Homepage, Events, Get Involved

Registration Open for 2020 NORD Rare Summit

Posted at July 7, 2019 09:01 am by Lisa Sencen

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with… Read More

June 19, 2019

TOPIC: Featured News, Medical, Patients & Members, Research, Patient Stories

The NORD Rare Disease Video Library Offers New Educational Resources

Posted at June 6, 2019 08:51 am by Lisa Sencen

New video library launched with funding from Incyte

Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has launched the NORD Rare Disease Video Library, a resource featuring videos on rare diseases and related topics for patients, caregivers, students, professionals and the… Read More

June 18, 2019

TOPIC: Press Releases, Featured News, Medical

NORD Launches Digital Education Initiative with PlatformQ Health

Posted at June 6, 2019 09:51 am by Lisa Sencen

New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases

 

BOSTON, MA and WASHINGTON, DC, June 18, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25 to 30 million Americans living with… Read More