Key Dates Approaching for NORD Summit
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Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit
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Published August 18, 2016 by NORD
Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit
Read morePublished June 28, 2016 by NORD
As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free …
Continue reading “NORD Publishes Physician Guide to Mitochondrial Myopathies”
Read morePublished May 27, 2016 by NORD
Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire …
Continue reading “NORD Members Share Great Resources for ER Visits During #RareERChat”
Read morePublished May 25, 2016 by NORD
May 26, 2016 1:00 – 2:00 p.m. EDT A trip to the emergency room with a rare disorder can present challenges. For one, few members of the ER staff may …
Read morePublished May 12, 2016 by NORD
The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …
Continue reading “NORD to Hold Rare Diseases Roundtable”
Read morePublished April 28, 2016 by NORD
WASHINGTON, D.C./BOSTON ― April 28, 2016 ―The National Organization for Rare Disorders (NORD), the country’s leading voice for the rare disease patient community, is collaborating with Trio Health to leverage …
Read morePublished March 1, 2016 by NORD
The Rare Neurological Disease Special Report™ was published on Rare Disease Day® in collaboration with the National Organization for Rare Disorders (NORD) as a supplement to the February 2016 issue …
Continue reading “Neurology Reviews Publishes The Rare Neurological Diseaes Special Report”
Read morePublished December 17, 2015 by NORD
On February 29, millions of people worldwide will come together to raise awareness about rare diseases and their impact on patients’ lives. This is our day to be heard, so speak up and tell your elected officials about what it is like to live rare.
Read morePublished December 4, 2015 by NORD
Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that …
Continue reading “New SIDS Study Says Other Factors May Increase Risk”
Read morePublished December 2, 2015 by NORD
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related …
Continue reading “Be a Hero: Help NORD Educate Current and Future Medical Professionals”
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