Rare Disease News

NORD Publishes Guide to Promote Physician Awareness of Rare Lung Disorder

Published October 28, 2015 by NORD

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Medical

NORD Publishes Free Online Guides to Encourage Diagnosis and Treatment for Patients The National Organization for Rare Disorders (NORD) has published a Physician Guide to Nontuberculous Mycobacterial Lung Disease to …

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Raise Your Voice: Rare Disease Day 2016 is Coming

Published October 12, 2015 by NORD

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Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of …

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Rare Disease of the Day

Published September 24, 2015 by NORD

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Von Hippel-Lindau disease (VHL)

Rare Disease Day 2016 Theme and Slogan Announced!

Published September 16, 2015 by NORD

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Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …

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New Video from NORD Promotes Awareness of Rare Movement Disorder Neurogenic Orthostatic Hypotension

Published August 24, 2015 by NORD

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New video promotes awareness and educates doctors about Neurogenic Orthostatic Hypotension

2015 Rare Disease and Orphan Products Breakthrough Summit

Published May 13, 2015 by NORD

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Save the Date for NORD’s Annual breakthrough summit.

The Will to Live and the Strength for a Cure

Published December 23, 2014 by NORD

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The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life

Saving Eliza

Published December 23, 2014 by NORD

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I’m honored to be speaking at the NORD Breakthrough Summit on Rare Diseases and Orphan Products in October

Life is a Special Occasion

Published December 23, 2014 by NORD

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Alena Galan is a happy 16-year old girl full of life and wise beyond her years. She can light up a room with her quick-witted charm and energetic personality. She …

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Taking Action for ACD

Published December 23, 2014 by NORD

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On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. …

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