Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.
Neurology Reviews is pleased to provide the most current information and news about rare neurological diseases. The 4th annual edition of the Read More
Posted at March 3, 2018 09:13 am by Christina Jensen
Washington, DC, March 20, 2018—A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders Rare Action Network™ (NORD RAN). The 2018 “State Report Card” indicates that progress in several areas of health policy… Read More
Posted at February 2, 2018 09:09 am by Christina Jensen
Listening Sessions to Enable Sharing Rare Disease Experiences with FDA Review Divisions
Washington, D.C., February 28, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced a collaboration with the Food and Drug Administration (FDA) on a pilot project that would help FDA medical reviewers better… Read More