October 26, 2016
TOPIC: Press Releases, Medical
Posted at October 10, 2016 10:52 am by Jennifer Huron
Washington, D.C., October 26, 2016—As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders has published The NORD Physician Guide to Cutaneous T-Cell Lymphoma (CTCL). This new resource is available free online to medical professionals around the world.
As the primary advocacy organization in the U.S. for people who… Read More
October 14, 2016
TOPIC: Press Releases, Featured News, Events, Patient Stories
Posted at October 10, 2016 04:47 pm by Jennifer Huron
Washington, D.C., October 14, 2016—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced it is accepting nominations for the 2017 Rare Impact Awards.
Submissions are now open online at www.rareimpact.org/awards. Submissions will close on Friday, January 13, 2017.
The 2017 Rare Impact Awards continues NORD’s 31-year tradition… Read More
October 5, 2016
TOPIC: Press Releases, Featured News, Events
Posted at October 10, 2016 05:58 pm by Jennifer Huron
Washington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases & Orphan Products Breakthrough Summit to be held Oct. 17-18 in Arlington, VA.
September 30, 2016
TOPIC: Press Releases, Featured News, Patient Stories
Posted at September 9, 2016 10:15 am by Jennifer Huron
We’re thrilled to announce a new partnership that will help raise awareness of rare diseases and connect The Mighty‘s wide-reaching readership with NORD resources. As part of the partnership, NORD, the leading independent 501(c)(3) advocacy organization dedicated to helping people with rare diseases, now has a growing home page on The Mighty and will appear on many… Read More
September 23, 2016
TOPIC: Press Releases, Advocacy
Posted at September 9, 2016 03:04 pm by Jennifer Huron
Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December
Washington, D.C., September 23, 2016 – On Thursday, the Senate reached an important compromise to accelerate new treatments to help 15 million sick children with rare diseases.
Led by Senators Robert Casey (D-PA), Johnny Isakson (R-GA), and Lamar Alexander (R-TN), the Senate voted unanimously to… Read More