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March 17, 2016

TOPIC: Press Releases, Featured News, Events

NORD Announces 2016 Rare Impact Award Recipients to be Honored on May 17

Posted at March 3, 2016 08:00 am by Jennifer Huron

Feat ImageContinuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® announces the 2016 Rare Impact Award recipients to be honored on May 17.

In its inaugural year, the Rare… Read More

March 15, 2016

TOPIC: Press Releases, Events, Get Involved

Running for Rare Named an Official Charity Partner of the 2016 TCS New York City Marathon Set for Sunday, November 6, 2016

Posted at March 3, 2016 03:20 pm by Jennifer Huron

running4rare_NORDRunning for Rare was named an Official Charity Partner of the 2016 TCS New York City Marathon, it was announced today by the National Organization for Rare Disorders (NORD). The race will take place on Sunday, November 6, 2016.

“Running for Rare is thrilled to partner… Read More

March 11, 2016

TOPIC: Press Releases, Events, Get Involved

Running for Rare Marathon Team Expands Under NORD

Posted at March 3, 2016 12:18 pm by Jennifer Huron

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running as a platform to raise awareness and support for… Read More

February 24, 2016

TOPIC: Press Releases, Advocacy

NORD Issues Statement on New FDA Commissioner Robert Califf, M.D.

Posted at February 2, 2016 01:52 pm by Jennifer Huron

Dr. Robert CaliffThe following statement was issued today by Peter L. Saltonstall, President and CEO of NORD, on the confirmation by the U.S. Senate of Robert Califf, M.D., as Commissioner of the Food and Drug Administration:

“On behalf of the rare disease community, I want to congratulate Dr. Califf on… Read More

January 4, 2016

TOPIC: Press Releases, Advocacy

FDA Approves 21 Orphan Drugs for Rare Diseases in 2015, Sets Record for Second Consecutive Year

Posted at January 1, 2016 01:54 pm by Jennifer Huron

fdaThe U.S. Food and Drug Administration announced today it approved 21 new orphan drugs to treat rare diseases in 2015, nearly half (47 percent) of all novel new drugs approved for the year.  This is the second consecutive year in which the FDA approved more orphan drugs for… Read More