Scroll
To Top

June 30, 2016

TOPIC: Press Releases, Events

FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October

Posted at June 6, 2016 04:02 pm by Jennifer Huron

RareSummit_Logo_RGB_240x206The Commissioner of the U.S. Food and Drug Administration, Robert Califf, M.D., will speak at NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit in October.

Commissioner Califf will provide an opening Keynote Address.  As the senior official of the FDA, Commissioner Califf leads the federal agency charged with… Read More

June 28, 2016

TOPIC: Press Releases, Medical

NORD Publishes Physician Guide to Mitochondrial Myopathies

Posted at June 6, 2016 09:39 am by Jennifer Huron

As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free online to medical professionals around the world.

The NORD Physician Guide was written by two widely acknowledged experts on this topic, Dr. Michelangelo Mancuso of University… Read More

June 16, 2016

TOPIC: Press Releases, Advocacy

NORD Applauds Senate for Authorizing Medical Foods Coverage for the Military in National Defense Authorization Act (S.2943)

Posted at June 6, 2016 10:15 am by Jennifer Huron

NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization Act for Fiscal Year 2017 (S.2943) on Tuesday.  The bill now must be harmonized with the House version passed last month.

“This is an important step to receive… Read More

June 15, 2016

TOPIC: Press Releases, Featured News

NORD Appoints Genetics and Metabolic Specialist Marshall L. Summar M.D. as Chairman of the Board

Posted at June 6, 2016 12:30 pm by Jennifer Huron

The National Organization for Rare Disorders (NORD), the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, has appointed Marshall L. Summar, M.D., as chairman of the board of directors. Dr…. Read More

May 12, 2016

TOPIC: Press Releases, Medical, Patients & Members, Research, Advocacy, Industry, Events

NORD to Hold Rare Diseases Roundtable

Posted at May 5, 2016 05:06 pm by Jennifer Huron

NORD_RareImpactAwards2016_Program_Page6The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community.

The roundtable will be held at the Warner Theatre in Washington, D.C., where NORD’s 2016 Rare Impact Awards are… Read More