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April 28, 2016

TOPIC: Press Releases, Featured News, Medical, Patients & Members, Research, Industry

NORD and Trio Health to Provide Real-World Insights to Improve Access and Quality of Care for More Than 7,000 Rare Diseases

Posted at April 4, 2016 12:43 pm by Jennifer Huron

NORD with Trio Health partnership

WASHINGTON, D.C./BOSTON ― April 28, 2016 ―The National Organization for Rare Disorders (NORD), the country’s leading voice for the rare disease patient community, is collaborating with Trio Health to leverage its innovative platform to monitor real-world patients. This unique insight will allow physicians, drug manufacturers,… Read More

April 19, 2016

TOPIC: Research, Press Releases

NORD Announces 20 Rare Disease Patient Groups Selected to Develop Natural History Studies as Part of FDA Cooperative Agreement

Posted at April 4, 2016 09:58 am by Jennifer Huron

NORD-FDANatural History Study Project (3)Twenty rare disease patient groups have been chosen to develop natural history studies with the assistance of the National Organization for Rare Disorders (NORD) supported in part by a cooperative agreement with the U.S. Food and Drug Administration (FDA).

NORD, the leading, independent nonprofit organization committed… Read More

March 17, 2016

TOPIC: Press Releases, Featured News, Events

NORD Announces 2016 Rare Impact Award Recipients to be Honored on May 17

Posted at March 3, 2016 08:00 am by Jennifer Huron

Feat ImageContinuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® announces the 2016 Rare Impact Award recipients to be honored on May 17.

In its inaugural year, the Rare… Read More

March 15, 2016

TOPIC: Press Releases, Events, Get Involved

Running for Rare Named an Official Charity Partner of the 2016 TCS New York City Marathon Set for Sunday, November 6, 2016

Posted at March 3, 2016 03:20 pm by Jennifer Huron

running4rare_NORDRunning for Rare was named an Official Charity Partner of the 2016 TCS New York City Marathon, it was announced today by the National Organization for Rare Disorders (NORD). The race will take place on Sunday, November 6, 2016.

“Running for Rare is thrilled to partner… Read More