RareLaunch Archives - NORD (National Organization for Rare Disorders)

January 20, 2022

NORD’s RareLaunch Program Announces Expanded Course Learning to Help Launch and Grow Rare Disease Nonprofits

Posted at January 1, 2022 09:05 am by Rohan Narayanan

RareLaunch provides critical hands-on learning and support to build capacity for rare disease-focused organizations

January 20, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced enhanced learning and updated courses now available through its innovative RareLaunch® program. Throughout its long history, NORD has been committed to supporting patients and families looking to start nonprofits and… Read More

Tags: research, Education, Chan Zuckerberg Initiative, RareLaunch, Forming a Foundation, Research Ready, Nonprofit, Learning, NORD

October 28, 2020

TOPIC: RareLaunch, Press Releases, Featured News, Members, Research, Advocacy

NORD Announces RareLaunch Workshops to Support Those Seeking to Start Rare Disease Nonprofits or Research Programs

Posted at October 10, 2020 09:37 am by Valaree DonFrancesco

Washington, DC, October 28, 2020—As part of its commitment to community engagement and organizational capacity building, the National Organization for Rare Disorders’ (NORD®) RareLaunch® training program will host two days of free workshops to take place in December, funded in part through a grant from the… Read More

Tags: National Center for Advancing Translational Sciences, Chan Zuckerberg Initiative, Silicon Valley Community Foundation, RareLaunch, Forming a Foundation, Research Ready, Dr. Christopher Austin, 501(c)(3), National Institutes of Health, Pamela Gavin

July 16, 2020

TOPIC: Press Releases, Featured News, RareLaunch, Members

CZI Grants to NORD and EURORDIS Support Organizational Capacity Building and Rare Disease Day Campaigns

Posted at July 7, 2020 12:30 pm by Valaree DonFrancesco

Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants will support organizational capacity building programs and awareness campaigns for Rare Disease Day, respectively, and are part of CZI’s Rare As One Project, aimed at supporting the… Read More

Tags: Rare As One Project, EURORDIS-Rare Diseases Europe, Rare Disease Day, eurordis, NORD, National Organization for Rare Disorders, covid-19, Chan Zuckerberg Initiative, CZI