RareLaunch Archives - NORD (National Organization for Rare Disorders)

October 28, 2020

TOPIC: Press Releases, Featured News, Patients & Members, Research, Advocacy, RareLaunch

NORD Announces RareLaunch Workshops to Support Those Seeking to Start Rare Disease Nonprofits or Research Programs

Posted at October 10, 2020 09:37 am by Valaree DonFrancesco

Washington, DC, October 28, 2020—As part of its commitment to community engagement and organizational capacity building, the National Organization for Rare Disorders’ (NORD®) RareLaunch® training program will host two days of free workshops to take place in December, funded in part through a grant from the… Read More

Tags: National Institutes of Health, Pamela Gavin, National Center for Advancing Translational Sciences, Chan Zuckerberg Initiative, Silicon Valley Community Foundation, RareLaunch, Forming a Foundation, Research Ready, Dr. Christopher Austin, 501(c)(3)

July 16, 2020

TOPIC: Press Releases, Featured News, Patients & Members, RareLaunch

CZI Grants to NORD and EURORDIS Support Organizational Capacity Building and Rare Disease Day Campaigns

Posted at July 7, 2020 12:30 pm by Valaree DonFrancesco

Today, the Chan Zuckerberg Initiative (CZI) announced $1.3 million in funding to support the global rare disease community through two distinct grants to NORD and EURORDIS-Rare Diseases Europe. These grants will support organizational capacity building programs and awareness campaigns for Rare Disease Day, respectively, and are part of CZI’s Rare As One Project, aimed at supporting the… Read More

Tags: Rare Disease Day, eurordis, NORD, National Organization for Rare Disorders, covid-19, Chan Zuckerberg Initiative, CZI, Rare As One Project, EURORDIS-Rare Diseases Europe