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December 15, 2021

TOPIC: Press Releases, Advocacy, RDACs

Celebrating Advocacy, Action and a Year of Success Building Rare Disease Advisory Councils

Posted at December 12, 2021 07:56 am by Rohan Narayanan

Seven Rare Disease Advisory Councils Established Since Launch of NORD’s Project RDAC

Washington, DC – December 15, 2021 – In 2015, the first rare disease advisory council was created in North Carolina by patients, caregivers, families, and providers. This year, the National Organization for Rare Disorders (NORD), the leading advocate for the over 25 million Americans living with a rare… Read More

November 18, 2020

TOPIC: Press Releases, Featured News, Advocacy, RDACs

NORD Launches Project RDAC, Announces Inaugural Meeting on December 16

Posted at November 11, 2020 09:15 am by Valaree DonFrancesco

Washington, DC, November 18, 2020—With a mission of empowering and equipping the rare disease community to effectively engage decision-makers within their state governments, the National Organization for Rare Disorders (NORD®) has launched an initiative that will assist in building well-organized, high-functioning Rare Disease Advisory Councils (RDACs)… Read More