Rare Disease News

NORD’s Latest Annual State Report Card Provides Crucial Benchmark as State Legislative Sessions Resume

Published February 19, 2025 by NORD

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Expanded Medicaid/CHIP Continuous Eligibility for Children, Step Therapy Reforms, andOut-of-Pocket Prescription Cost Protections Among 2024 State Improvements Feb. 19, 2025, Washington, D.C. — The National Organization for Rare Disorders (NORD®) today issued …

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Mississippi Enacts Critical Reform to Improve Access to Care for the 1 in 10 State Residents Living with a Rare Disease

Published April 16, 2024 by NORD

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Since NORD launched Project RDAC in 2020, Mississippi becomes the 28th state to establish an RDAC to better focus public policy efforts for people living with rare diseases. JACKSON, MS, …

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NORD and Vermont Advocates Convene in Montpelier Calling for Step Therapy Reform

Published April 10, 2024 by NORD

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MONTPELIER, VT—On April 10, advocates from NORD and our Rare Action Network® joined five other local organizations at the Vermont State Capitol to call attention to an important piece of …

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A Rare Report Card: NORD Grades All 50 States on Rare Disease Policy Issues

Published February 22, 2022 by NORD

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NORD’s State Report Card Provides Critical Analysis Across Nine Policy Areas, Including Telehealth, Drug Costs, Medicaid Eligibility, and More February 22, 2022, Washington, DC – Today, the National Organization for …

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NORD State Report Card Grades States on Policy Issues Critical to Rare Disease Patients

Published January 27, 2021 by NORD

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Washington, DC, January 27, 2021—Today, the National Organization for Rare Disorders (NORD®) and its Rare Action Network (RAN™) published the 6th Edition of the State Report Card, the annual report rating each state and Washington, DC on the …

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