Scroll
To Top

June 13, 2017

TOPIC: Medical, Press Releases, Research, Sticky Posts for Clinicians and Researchers

NORD Publishes New Rare Disease Report on CARD9 Deficiency

Posted at June 6, 2017 09:28 am by Christina Jensen

Washington, D.C., June 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on CARD9 Deficiency. This new resource is available free online to individuals around the world.

As the primary advocacy organization in the U.S. for people who have rare diseases, NORD provides… Read More

May 30, 2017

TOPIC: Featured News, Medical, Research, Sticky Posts for Clinicians and Researchers

NORD Publishes Report on Hereditary Sensory Autonomic Neuropathy Type 1E

Posted at May 5, 2017 09:23 am by Christina Jensen

Washington, D.C., May 30, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Hereditary Sensory Autonomic Neuropathy Type 1E (HSAN1E). This new resource is available free online to individuals around the world.

As the primary advocacy organization in the U.S. for… Read More

August 16, 2016

TOPIC: Research, Sticky Posts for Clinicians and Researchers, Sticky Posts for Industry, Sticky Posts for Patient Organizations

NORD Announces Research Grants Available for Study of Rare Diseases

Posted at August 8, 2016 09:46 am by Jennifer Huron

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to study rare diseases. NORD’s 2016 research grant funding is available for the study of:

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins – One (1) grant of up to… Read More

June 14, 2016

TOPIC: Featured News, Get Involved, Medical, Patients & Members, Sticky Posts for Advocate, Sticky Posts for Clinicians and Researchers, Sticky Posts for Industry, Sticky Posts for Patient Organizations, Sticky Posts for Patients and Families

NORD Speakers Bureau

Posted at June 6, 2016 10:11 am by Mary Dunkle

Need a Speaker for Your Classroom or Event? Contact NORD!

 

Teachers, medical school professors, and community members seeking speakers to talk about rare diseases in the classroom or at community events can contact NORD for help. Working closely with its 250 member organizations, NORD now has a Patient/Caregiver Speakers Bureau to match seasoned volunteer speakers with opportunities in their local… Read More

August 24, 2015

TOPIC: Medical, Patient Stories, Press Releases, Sticky Posts for Clinicians and Researchers

New Video from NORD Promotes Awareness of Rare Movement Disorder Neurogenic Orthostatic Hypotension

Posted at August 8, 2015 12:48 pm by Jennifer Huron

A new video released today by the National Organization for Rare Disorders (NORD) fills a gap in health care by educating patients and doctors about a rare medical condition known as Neurogenic Orthostatic Hypotension (nOH), and how to improve patient outcomes.

“Living with a rare condition like nOH affects every part of your daily life,” says Mary Dunkle, Vice President of… Read More