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October 4, 2019

TOPIC: Sticky Posts for Homepage, Sticky Posts for Patients and Families

NORD Patient Assistance Program for 2020

Posted at October 10, 2019 07:00 am by Valaree DonFrancesco

NORD is glad to have been able to assist you in accessing care and treatment for your rare disorder in 2019. If you need continued assistance in 2020, it’s time to re-enroll. Programs will be opening on a rolling basis. Please look out for re-enrollment communications in your email and mail this month and in coming months… Read More

July 2, 2019

TOPIC: Featured News, Medical, Patients & Members, Advocacy, Industry, Sticky Posts for Homepage, Events, Get Involved

Registration Open for 2020 NORD Rare Summit

Posted at July 7, 2019 09:01 am by Lisa Sencen

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with… Read More

May 7, 2019

TOPIC: Press Releases, Featured News, Patients & Members, Advocacy, Industry, Sticky Posts for Homepage

NORD Releases Principles for Assessing Proposals Designed to Lower the Cost of Prescription Drugs in the United States

Posted at May 5, 2019 09:42 am by Lisa Sencen

Washington, DC, May 7, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced its development of key drug pricing principles, created with the needs of the rare disease community in mind.

People living with rare diseases must be able to afford the therapies that… Read More