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August 16, 2016

TOPIC: Research, Sticky Posts for Clinicians and Researchers, Sticky Posts for Industry, Sticky Posts for Patient Organizations

NORD Announces Research Grants Available for Study of Rare Diseases

Posted at August 8, 2016 09:46 am by Jennifer Huron

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to study rare diseases. NORD’s 2016 research grant funding is available for the study of:

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins – One (1) grant of up to… Read More

June 14, 2016

TOPIC: Featured News, Get Involved, Medical, Patients & Members, Sticky Posts for Advocate, Sticky Posts for Clinicians and Researchers, Sticky Posts for Industry, Sticky Posts for Patient Organizations, Sticky Posts for Patients and Families

NORD Speakers Bureau

Posted at June 6, 2016 10:11 am by Mary Dunkle

Need a Speaker for Your Classroom or Event? Contact NORD!

 

Teachers, medical school professors, and community members seeking speakers to talk about rare diseases in the classroom or at community events can contact NORD for help. Working closely with its 250 member organizations, NORD now has a Patient/Caregiver Speakers Bureau to match seasoned volunteer speakers with opportunities in their local… Read More

October 22, 2015

TOPIC: Advocacy, Featured News, Get Involved, Sticky Posts for Advocate, Sticky Posts for Industry, Sticky Posts for Patient Organizations, Sticky Posts for Patients and Families

NORD Releases First-Ever State Progress Report for Rare Diseases

Posted at October 10, 2015 03:00 pm by Jennifer Huron

Leading Advocacy Organization Drives Health Policy Improvements for 30 Million Americans with Rare Diseases through Rare Action™ Network

With patient access to health care becoming increasingly dependent upon state policies, the National Organization for Rare Disorders (NORD)® has developed and released the first-ever State Progress Report to evaluate how states are serving the 30 million Americans with rare… Read More

May 13, 2015

TOPIC: Featured News, Medical, Patients & Members, Research, Sticky Posts for Advocate, Sticky Posts for Clinicians and Researchers, Sticky Posts for Industry, Sticky Posts for Patient Organizations, Sticky Posts for Patients and Families

2015 Rare Disease and Orphan Products Breakthrough Summit

Posted at May 5, 2015 08:00 am by Lisa Phelps

Save The Date for NORD’s Annual Rare Diseases and Orphan Products Breakthrough Summit – October 21-22, 2015 at the Crystal City Marriott in Arlington, VA.

This is the largest and most meaningful multi-stakeholder event of its kind – Historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product… Read More