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August 24, 2015

TOPIC: Sticky Posts for Patients and Families

Autoinflammatory Alliance

Posted at August 8, 2015 01:09 pm by Lisa Sencen

The Autoinflammatory Alliance is a non-profit, voluntary organization dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. The Autoinflammatory Alliance is celebrating its first ever awareness month! Raise more awareness by using the hashtaghs #autoinflammatoryaugust for the rest of this month!

1.) What does it mean to you personally to be a patient organization serving… Read More

May 13, 2015

TOPIC: Featured News, Medical, Patients & Members, Research, Sticky Posts for Patient Organizations, Sticky Posts for Patients and Families, Sticky Posts for Industry, Sticky Posts for Clinicians and Researchers, Sticky Posts for Advocate

2015 Rare Disease and Orphan Products Breakthrough Summit

Posted at May 5, 2015 08:00 am by Lisa Sencen

Save The Date for NORD’s Annual Rare Diseases and Orphan Products Breakthrough Summit – October 21-22, 2015 at the Crystal City Marriott in Arlington, VA.

This is the largest and most meaningful multi-stakeholder event of its kind – Historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product… Read More