Rare Disease News

Undiagnosed: Medical Students Work to Change Rare Disease Curriculum

Published April 29, 2025 by NORD

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In honor of Undiagnosed Day on April 29, the National Organization for Rare Disorders (NORD) celebrates the health care providers of today and tomorrow who are working to shorten the …

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Hack Rare: Engaging the Next Generation of Rare Disease Innovators

Published February 7, 2025 by NORD

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By Aditya Tummala, Sydney Wiredu, Derek Liu, and Pranav Ramesh Harvard College, Class of 2026 Long-time researchers in the field of rare diseases know what it’s like to experience a …

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NORD Students for Rare Member Provides Her Perspective on “Unlocking the Power of Health Care Data” Summit Panel

Published December 16, 2020 by NORD

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As a 2020 scholarship recipient, I was able to attend the NORD Rare Diseases and Orphan Products and Breakthrough Summit in October and to hear from inspiring patients, hard-working medical …

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