NORD is leading the fight to improve the lives of patients with rare diseases.
For more information or to learn more, use the contact details below or sign up for email communications here.
55 Kenosia Avenue
Danbury, CT 06810
1779 Massachusetts Avenue
Washington, DC 20036
1900 Crown Colony Drive, Suite 310
Quincy, MA 02169
Please use this form if you are seeking additional information from our Information Services Team.
Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:
Summer hours will be observed May 28 – August 30 as follows:
Monday-Friday: 9:00a.m.- 6:00p.m. EST
Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.
For individuals outside of the U.S. seeking information or resources from NORD, please note that we will do our best to respond to your message but strongly suggest that you contact your national rare disease organization using the quick links below. For a full listing of NORD’s global partner organizations, visit Rare Diseases International (RDI).
If you are a news media professional with a question for NORD, please submit your request using the form here. Please include as much information as possible with your request.
The form below is dedicated to responding to requests from credentialed journalists. If this is a non-media inquiry please reach out to NORD’s main line. You can reach NORD by dialing 203-744-0100 or by submitting the form below.