Sotos Syndrome Support Association of Canada

The Sotos Syndrome Support Association of Canada is to provide support to persons with Sotos syndrome and their families. Since a diagnosis of Sotos syndrome is typically made in the first few years of life, it can be trying for families as they try to deal with the diagnosis, determine what they can expect for their child, and learn what they can do to best support their child’s development. SSSAC endeavors to support families by providing them with information by way of handbooks, pamphlets, Internet, public lectures, and discussions, and with emotional support by facilitating discussions with other parents who have been through similar experiences. SSSAC also promotes public awareness of Sotos syndrome in each province in Canada, among educators, families and members of the medical community.