{"id":274181,"date":"2024-11-06T19:27:37","date_gmt":"2024-11-07T00:27:37","guid":{"rendered":"https:\/\/rarediseases.org\/?p=274181"},"modified":"2024-11-07T09:19:14","modified_gmt":"2024-11-07T14:19:14","slug":"national-organization-for-rare-disorders-ceo-pamela-gavins-statement-on-2024-election","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/national-organization-for-rare-disorders-ceo-pamela-gavins-statement-on-2024-election\/","title":{"rendered":"National Organization for Rare Disorders CEO Pamela Gavin\u2019s Statement on 2024 Election"},"content":{"rendered":"

For 41 years, as a nonpartisan nonprofit organization, the National Organization for Rare Disorders (NORD) has collaborated with administrations and policymakers at every level to address the urgent needs of the rare disease community.<\/p>\n

We remain committed to working with all newly-elected officials, urging them to recognize rare disease as a critical public health priority and enact policies that can best meet our community\u2019s complex needs.<\/p>\n

Our motto continues to be true: Alone we are rare. Together we are strong.<\/p>\n

\"NORD<\/p>\n

Pamela Gavin
\nChief Executive Officer<\/p>\n","protected":false},"excerpt":{"rendered":"

For 41 years, as a nonpartisan nonprofit organization, the National Organization for Rare Disorders (NORD) has collaborated with administrations and policymakers at every level to address the urgent needs of … <\/p>\n

Continue reading “National Organization for Rare Disorders CEO Pamela Gavin\u2019s Statement on 2024 Election”<\/span><\/a><\/p>\n","protected":false},"author":13,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,4324],"tags":[],"class_list":["post-274181","post","type-post","status-publish","format-standard","hentry","category-advocacy","category-statements"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/274181","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=274181"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/274181\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=274181"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=274181"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=274181"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}