{"id":279632,"date":"2025-06-17T13:36:50","date_gmt":"2025-06-17T17:36:50","guid":{"rendered":"https:\/\/rarediseases.org\/?p=279632"},"modified":"2025-12-02T16:08:40","modified_gmt":"2025-12-02T21:08:40","slug":"answer-the-call-to-help-build-a-healthier-future","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/answer-the-call-to-help-build-a-healthier-future\/","title":{"rendered":"Answer the Call to Help Build a Healthier Future\u202f"},"content":{"rendered":"<p>We\u2019re all human, but we\u2019re not all the same. Often, our differences \u2014 like age, lifestyle habits, or where we live \u2014 can reveal important insights about our health.<\/p>\n<p>The National Institutes of Health (NIH) <a href=\"https:\/\/www.joinallofus.org\/?utm_source=cep-pyxis&amp;utm_medium=referral&amp;utm_campaign=aou-blog&amp;utm_term=cta-button\" target=\"_blank\" rel=\"noopener nofollow\"><i>All of Us<\/i> Research Program<\/a> collects and makes available data that can help researchers understand more about why people get sick or stay healthy. The <i>All of Us<\/i> Research Program aims to ensure that everyone who participates in their study is seen, heard, and counted.<\/p>\n<p>Shantelle Little, an <i>All of Us<\/i> participant, explains why she decided to join the program.<\/p>\n<blockquote class=\"style1\"><p>\u201cI think that what\u2019s unique and important about the <i>All of Us<\/i> Research Program is that there are treatments and medications that don\u2019t work for everyone. And this program is really trying to find out why. They\u2019re looking into lifestyle, your environment, your genetics, to get that answer, and I think that\u2019s important.<\/p>\n<p>I wanted to be part of this program and be involved because I believe it\u2019s important that research reflects the experiences of everyone in our community. And I\u2019m glad this program shares that value.<\/p>\n<p>I would say to anyone who has reservations about joining that you could possibly be a part of medical breakthroughs in the future. Why would you not want to be a part of that?<\/p>\n<p>I\u2019m Shantelle, and I joined for all of us.\u201d<\/p><\/blockquote>\n<p>The National Organization for Rare Disorders (NORD\u00ae) is proud to partner with NIH and the <i>All of Us<\/i> Research Program to help encourage people from all communities to join so researchers will have the opportunity to gain valuable insights into their health and possibly discover valuable and life-changing treatments, leading to a healthier future.<\/p>\n<div class=\"su-button-center\"><a href=\"https:\/\/www.joinallofus.org\/?utm_source=cep-pyxis&#038;utm_medium=referral&#038;utm_campaign=aou-blog&#038;utm_term=cta-button\" class=\"su-button su-button-style-default\" style=\"color:#FFFFFF;background-color:#FC4C02;border-color:#ca3d02;border-radius:7px\" target=\"_blank\" rel=\"noopener noreferrer nofollow\"><span style=\"color:#FFFFFF;padding:7px 20px;font-size:16px;line-height:24px;border-color:#fd824e;border-radius:7px;text-shadow:none\"><strong><i class=\"sui sui-external-link\" style=\"font-size:16px;color:#FFFFFF\"><\/i> Answer the call<\/strong><\/span><\/a><\/div>\n<style>blockquote.style1{border-left:4px solid #ccc;margin:1.5em 0;padding-left:1em;color:#555;font-style:italic}blockquote.style1 p{margin:0 0 1em;line-height:1.5}blockquote.style1 p:last-child{margin-bottom:0}<\/style>\n","protected":false},"excerpt":{"rendered":"<p>We\u2019re all human, but we\u2019re not all the same. Often, our differences \u2014 like age, lifestyle habits, or where we live \u2014 can reveal important insights about our health. The &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/answer-the-call-to-help-build-a-healthier-future\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Answer the Call to Help Build a Healthier Future\u202f&#8221;<\/span><\/a><\/p>\n","protected":false},"author":13,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[193],"tags":[4357],"class_list":["post-279632","post","type-post","status-publish","format-standard","hentry","category-research","tag-ran-2025-export"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/279632","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=279632"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/279632\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=279632"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=279632"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=279632"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}