{"id":280252,"date":"2025-07-21T15:16:56","date_gmt":"2025-07-21T19:16:56","guid":{"rendered":"https:\/\/rarediseases.org\/?p=280252"},"modified":"2025-12-02T15:53:19","modified_gmt":"2025-12-02T20:53:19","slug":"living-rare-living-stronger-georgia","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/living-rare-living-stronger-georgia\/","title":{"rendered":"Community Recap: Living Rare, Living Stronger in Georgia"},"content":{"rendered":"

For years, the National Organization for Rare Disorders (NORD\u00ae<\/sup>) <\/span>Living Rare, Living Stronger\u00ae<\/sup><\/span><\/a> event has been an annual forum for rare disease patients, families, caregivers, and experts to forge lasting connections. This year, we\u2019re hosting two Living Rare, Living Stronger events in different regions so that you have more opportunities to connect in person with NORD and the experts at our NORD Rare Disease Centers of Excellence, as well as other rare individuals in your region. <\/span>\u00a0<\/span><\/p>\n

We kicked off the first of our 2025 Living Rare, Living Stronger event series on June 27 at the Georgia Aquarium in Atlanta<\/strong>, where more than 140 rare patients, family members, clinicians, and doctors gathered for a full day of learning, connecting, and sightseeing. <\/span><\/p>\n

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The Georgia Aquarium provided a breathtaking backdrop for the event.<\/em><\/figcaption><\/figure>\n

A \u201cVillage\u201d that Accepts You for Who You Are<\/h2>\n

Living Rare, Living Stronger isn\u2019t only about navigating health care. It\u2019s also about how to live life as your most authentic self in community with others who understand you and lift you up. In the session, \u201cFinding Your Rare Village,\u201d we talked about how to communicate your family\u2019s needs and experiences with rare disease to your friends and community.<\/span>\u00a0<\/span><\/p>\n