{"id":280633,"date":"2025-08-13T15:29:55","date_gmt":"2025-08-13T19:29:55","guid":{"rendered":"https:\/\/rarediseases.org\/?p=280633"},"modified":"2025-08-13T15:29:55","modified_gmt":"2025-08-13T19:29:55","slug":"national-organization-for-rare-disorders-nord-announces-annual-seed-grant-rfps-totaling-245000-to-accelerate-research-for-five-rare-diseases","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/national-organization-for-rare-disorders-nord-announces-annual-seed-grant-rfps-totaling-245000-to-accelerate-research-for-five-rare-diseases\/","title":{"rendered":"National Organization for Rare Disorders (NORD) Announces Annual Seed Grant RFPs Totaling $245,000 to Accelerate Research for Five Rare Diseases"},"content":{"rendered":"<p><span data-contrast=\"auto\">The National Organization for Rare Disorders (NORD\u00ae), the<\/span><span data-contrast=\"none\">\u00a0leading national nonprofit serving more than 30 million Americans with rare diseases, announced five new requests for proposals (RFPs) totaling $245,000 in seed grant funding<\/span><span data-contrast=\"auto\">. The grants are part of NORD\u2019s <a href=\"https:\/\/rarediseases.org\/advancing-research\/research-grant-programs\/\"><strong>Rare Disease Research Grant Program<\/strong><\/a>, which provides essential early-stage funding to jumpstart promising investigations and accelerate the development of potential treatments for rare diseases where therapeutic options are limited or non-existent.\u00a0\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">These grants were funded by the Appendix Cancer\/Pseudomyxoma Peritonei Research Foundation, a NORD Member patient organization; the Peutz-Jeghers Syndrome community; the Epidermodysplasia Verruciformis community; the Pseudomyxoma Peritonei community; and Dylan\u2019s Rare Chromosome Dream Team and the Partial Trisomy 6q community.<\/span><\/p>\n<p><strong>This cycle, NORD is seeking proposals for the following rare diseases:\u00a0<\/strong><\/p>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><a href=\"https:\/\/rarediseases.org\/rare-diseases\/chromosome-6-partial-trisomy-6q\/\"><b><i><span data-contrast=\"none\">Chromosome 6, Partial Trisomy 6q<\/span><\/i><\/b><\/a><span data-contrast=\"auto\"> \u2013 An extremely rare <\/span><span data-contrast=\"none\">chromosomal disorder in which a portion of the 6th chromosome (6q) is present three times (trisomy) rather than twice in cells of the body.<\/span><span data-ccp-props=\"{&quot;335559738&quot;:240,&quot;335559739&quot;:240}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><a href=\"https:\/\/rarediseases.org\/mondo-disease\/epidermodysplasia-verruciformis\/\"><b><i><span data-contrast=\"none\">Epidermodysplasia Verruciformis (EV)<\/span><\/i><\/b><\/a> <span data-contrast=\"auto\">\u2013<\/span> <span data-contrast=\"none\">A rare genetic genodermatosis characterized by a compromised immunologic ability to defend against and eradicate certain types of human papillomavirus (HPV) leading to polymorphous cutaneous lesions and high risk of developing non-melanoma skin cancer.<\/span><span data-ccp-props=\"{&quot;335559738&quot;:240,&quot;335559739&quot;:240}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"3\" data-aria-level=\"1\"><a href=\"https:\/\/rarediseases.org\/rare-diseases\/peutz-jeghers-syndrome\/\"><b><i><span data-contrast=\"none\">Peutz-Jeghers Syndrome (PJS)<\/span><\/i><\/b><\/a> <span data-contrast=\"auto\">\u2013 A <\/span><span data-contrast=\"none\">rare genetic condition characterized by the development of benign polyps in the stomach and the intestines (gastrointestinal tract) and by distinctive dark spots on the skin and mucous membranes.<\/span><span data-ccp-props=\"{&quot;335559738&quot;:240,&quot;335559739&quot;:240}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"4\" data-aria-level=\"1\"><a href=\"https:\/\/rarediseases.org\/rare-diseases\/pseudomyxoma-peritonei\/\"><b><i><span data-contrast=\"none\">Pseudomyxoma Peritonei (PMP)<\/span><\/i><\/b><\/a><i><span data-contrast=\"auto\"> \u2013 <\/span><\/i><span data-contrast=\"none\">A rare, malignant growth characterized by the progressive accumulation of mucus-secreting (mucinous) tumor cells within the abdomen and pelvis.<\/span><span data-ccp-props=\"{&quot;335559738&quot;:240,&quot;335559739&quot;:240}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"2\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" data-aria-posinset=\"5\" data-aria-level=\"1\"><a href=\"https:\/\/rarediseases.org\/rare-diseases\/appendiceal-cancer-tumors\/\"><b><i><span data-contrast=\"none\">Appendix Cancer\/Pseudomyxoma Peritonei (ACPMP)<\/span><\/i><\/b><\/a><i><span data-contrast=\"auto\"> \u2013 <\/span><\/i><span data-contrast=\"none\">An extremely rare cancer of the appendix that typically starts in the appendix and frequently spreads to the abdominal cavity which can lead to either a build-up of mucinous fluid in the abdomen known as pseudomyxoma peritonei or a condition referred to as peritoneal carcinomatosis.<\/span><\/li>\n<\/ul>\n<p><span data-contrast=\"none\">Recipients will be awarded to qualified researchers to initiate small scientific research studies or clinical trials with the potential to attract larger funding from agencies like the National Institutes of Health (NIH), the U.S. Food &amp; Drug Administration (FDA), or corporate sponsors. <\/span><span data-contrast=\"auto\">This early support helps expand promising early-stage projects into comprehensive, multi-phase studies that can lead to new treatments for rare and complex diseases. <\/span><span data-contrast=\"none\">Applications will be reviewed by NORD\u2019s Medical Advisory Committee, a panel of volunteer rare disease medical experts.<\/span><span data-ccp-props=\"{&quot;335557856&quot;:16777215,&quot;335559739&quot;:240}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">How to Apply:<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:279}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The application period opens on August 13, 2025 and closes on October 12, 2025 (11:59 pm PT). <\/span><span data-contrast=\"none\">R<\/span><span data-contrast=\"none\">esearchers at accredited academic institutions, hospitals and nonprofit research centers; early-career investigators encouraged to apply. <\/span><strong><a href=\"https:\/\/rarediseases.org\/advancing-research\/request-for-proposals\/\">Learn more and view application instructions for each RFP here.<\/a>\u00a0<\/strong><\/p>\n<p><b><span data-contrast=\"auto\">About NORD\u2019s Rare Disease Research Grant Program<\/span><\/b><br \/>\n<span data-contrast=\"auto\">Since 1989, NORD has awarded more than $9 million in research grants to advance scientific discovery for rare diseases that lack treatment and research funding. With fewer than 5% of the approximately 10,000 known rare diseases having an FDA-approved therapy, and the cost to develop a prescriptive medication costing millions of dollars, early-stage funding plays a critical role in unlocking progress. NORD\u2019s grant program has jump-started critical rare disease research, supported numerous peer-reviewed publications, and contributed to the development of two FDA-approved treatments.<\/span><span data-ccp-props=\"{&quot;335557856&quot;:16777215,&quot;335559739&quot;:240}\"> Learn more about NORD&#8217;s <strong><a href=\"https:\/\/rarediseases.org\/advancing-research\/research-grant-programs\/\">Rare Disease Research Grants Program<\/a><\/strong>.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The National Organization for Rare Disorders (NORD\u00ae), the\u00a0leading national nonprofit serving more than 30 million Americans with rare diseases, announced five new requests for proposals (RFPs) totaling $245,000 in seed &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/national-organization-for-rare-disorders-nord-announces-annual-seed-grant-rfps-totaling-245000-to-accelerate-research-for-five-rare-diseases\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;National Organization for Rare Disorders (NORD) Announces Annual Seed Grant RFPs Totaling $245,000 to Accelerate Research for Five Rare Diseases&#8221;<\/span><\/a><\/p>\n","protected":false},"author":13,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[193,190,504],"tags":[],"class_list":["post-280633","post","type-post","status-publish","format-standard","hentry","category-research","category-featured-news","category-press-releases"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/280633","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=280633"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/280633\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=280633"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=280633"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=280633"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}