{"id":287854,"date":"2026-02-23T12:00:19","date_gmt":"2026-02-23T17:00:19","guid":{"rendered":"https:\/\/rarediseases.org\/?p=287854"},"modified":"2026-02-23T09:05:39","modified_gmt":"2026-02-23T14:05:39","slug":"earn-your-stripes-nord-launches-rare-disease-day-cme-challenge-to-close-critical-gaps-in-rare-disease-education","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/earn-your-stripes-nord-launches-rare-disease-day-cme-challenge-to-close-critical-gaps-in-rare-disease-education\/","title":{"rendered":"Earn Your Stripes: NORD Launches Rare Disease Day\u00ae CME Challenge to Close Critical Gaps in Rare Disease Education"},"content":{"rendered":"<h3 style=\"text-align: center;\"><strong><i>Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis\u00a0<\/i>\u00a0<\/strong><\/h3>\n<p><strong>BOSTON and NORWELL,\u00a0Mass., FEB 23, 2026<\/strong><span data-contrast=\"none\">\u00a0<\/span><span data-contrast=\"auto\">&#8211;<\/span><span data-contrast=\"none\">\u00a0<\/span><span data-contrast=\"auto\">In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD\u00ae) today announced the launch of the\u00a0<\/span><a href=\"http:\/\/www.medlive.com\/nord\" target=\"_blank\" rel=\"noopener nofollow\"><span data-contrast=\"none\">Earn Your<\/span><b><span data-contrast=\"none\">\u00a0<\/span><\/b><span data-contrast=\"none\">Stripes: Rare Disease CME Challenge<\/span><\/a><span data-contrast=\"auto\">, a nationwide educational initiative designed to increase healthcare professional participation in continuing medical education (CME) for rare conditions.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Running from\u00a0February 23 through March 31, the campaign encourages clinicians across specialties, including primary care\u00a0and\u00a0pediatrics,\u00a0to complete CME courses that help improve the early identification, diagnosis, and management of rare conditions.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">More than 30 million Americans are currently living with a rare disease, yet many clinicians receive limited training on how to recognize or manage these often-complex conditions. This gap can lead to delayed diagnoses, care inequities, and missed opportunities for early interventions that can dramatically improve patient outcomes. By\u00a0participating\u00a0in the Rare Disease CME Challenge, providers can strengthen their ability to support both diagnosed and undiagnosed patients, enhancing outcomes and improving care pathways for some of the most vulnerable populations.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cPrimary-care physicians and pediatricians are often the first to see signs of rare disease, yet many receive limited training in recognizing them,\u201d said <strong>NORD Chief Executive Officer Pamela Gavin<\/strong>. \u201cOur CME Challenge gives providers practical tools that can make an immediate difference. Because rare disease is often invisible, patients and families \u2018show their stripes\u2019 to raise awareness, and healthcare professionals can do the same by strengthening diagnostic awareness and delivering more informed care.\u201d<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">&#8220;Many clinicians receive limited training on rare diseases, yet they&#8217;re often the first to see warning signs: a gap that can mean years of delayed diagnosis for patients,\u201d said <strong>Robert Rosenbloom, Chief Executive Officer,\u00a0Medlive<\/strong>. \u201cIn recognition of Rare Disease Day,\u00a0we&#8217;re <\/span><span data-contrast=\"none\">proud to launch the first-of-its-kind Earn Your Stripes CME Challenge with NORD, together empowering clinicians to close this critical knowledge gap and accelerate the path to answers for the 30 million Americans living with rare diseases.&#8221;\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">What is the\u00a0Rare Disease CME Challenge?<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The campaign aligns with NORD\u2019s annual Show Your Stripes Rare Disease Day initiative and\u00a0leverages\u00a0the strengths of the\u00a0Medlive\u00a0education platform to deliver accessible, high-quality, video-first content. For more than six years,\u00a0Medlive\u00a0has partnered with NORD to deliver exclusive rare disease programming to more than 76,000 clinicians, patients, and caregivers, with 93 percent of participating clinicians reporting positive changes to their practice, and two-thirds of patients and caregivers reporting improved communication with their healthcare team.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">Program Highlights:<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"27\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"1\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">CME\u00a0Education Challenge<\/span><\/b><br \/>\n<span data-contrast=\"auto\">From\u00a0February 23 to March 31, current and future healthcare providers are encouraged to complete accredited CME courses focused on rare\u00a0disease recognition, clinical guidelines, treatment pathways, and care coordination.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/li>\n<\/ul>\n<ul>\n<li aria-setsize=\"-1\" data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"27\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559685&quot;:720,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;multilevel&quot;}\" data-aria-posinset=\"2\" data-aria-level=\"1\"><b><span data-contrast=\"auto\">Certificate of Commitment<\/span><\/b><br \/>\n<span data-contrast=\"auto\">Those who complete\u00a0a rare disease CME program on\u00a0Medlive\u00a0will\u00a0receive a certificate acknowledging their contribution to improving rare disease outcomes through education.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/li>\n<\/ul>\n<p><b><span data-contrast=\"auto\">Why Rare Disease CME Matters<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">In the United States, rare diseases are defined as medical conditions affecting fewer than 200,000 people.\u00a0More than\u00a030 million Americans, close to 1 in 10, are living with a rare disease. Approximately 80\u00a0percent\u00a0of these rare diseases either have, or are strongly suspected to have, a genetic cause. More than\u00a0half\u00a0of\u00a0rare\u00a0patients are\u00a0children.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The average rare-disease patient waits years for a diagnosis, often seeing multiple\u00a0specialists before receiving answers. Many rare\u00a0diseases\u00a0initially\u00a0present in primary care or\u00a0pediatric settings,\u00a0where quick recognition can change the trajectory of care.\u00a0Increased awareness, even of general red flags, empowers clinicians to make earlier referrals, order\u00a0appropriate tests, and support families more effectively.\u00a0Even for\u00a0experienced clinicians,\u00a0NORD CME programs include the most up-to-date treatment guidelines reflecting recent FDA-approved therapies.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">How to Earn Your Stripes<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The zebra is the official mascot for rare\u00a0disease patients. Historically, medical professionals were told that when they \u201chear hoofbeats,\u201d they should not expect to see a zebra. In other words, look for the more common answer:\u00a0a horse.\u00a0But,\u00a0the rare-disease community knows\u00a0that one in 10 Americans is\u00a0actually a\u00a0zebra.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">It might not be obvious when looking at a rare patient, which is why they show their stripes to raise awareness. By joining the challenge, healthcare professionals can show their own stripes and sharpen their diagnostic skills, strengthen patient trust, and\u00a0demonstrate\u00a0their commitment to delivering\u00a0equitable, informed care.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Learn more and sign up at\u00a0<\/span><a href=\"https:\/\/www.medlive.com\/nord\" target=\"_blank\" rel=\"noopener nofollow\"><span data-contrast=\"none\">https:\/\/www.medlive.com\/nord<\/span><\/a><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Show\u00a0your stripes,\u00a0support\u00a0colleagues\u00a0and encourage participation\u00a0on social media with the hashtag\u00a0#EarnYourStripes.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">About Rare Disease Day<\/span><\/b><b><span data-contrast=\"none\">\u00ae<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 28.\u00a0NORD is proud to be the official U.S. partner for Rare Disease Day.\u00a0Learn more at\u00a0<\/span><a href=\"https:\/\/rarediseases.org\/rare-disease-day\/shop-rare\/\" target=\"_blank\" rel=\"noopener\"><span data-contrast=\"none\">rarediseaseday.us<\/span><\/a><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">About the National Organization for Rare Disorders\u00a0<\/span><\/b><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Founded in 1983, the National Organization for Rare Disorders (NORD\u00ae) is a leading independent, nonpartisan, nonprofit organization dedicated to improving the health and lives of over 30 million Americans living with rare diseases. In partnership with more than 350 disease-specific member patient organizations, NORD drives progress in rare disease research, care, and policy. Learn more at\u00a0<\/span><a href=\"https:\/\/rarediseases.org\/\" target=\"_blank\" rel=\"noopener\"><b><span data-contrast=\"auto\">rarediseases.org<\/span><\/b><\/a><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"none\">About Medlive<\/span><\/b><br \/>\n<span data-contrast=\"none\">Medlive delivers trusted education from the leading clinician associations,\u00a0established\u00a0patient advocacy groups, and expert voices in oncology, neurology, rare disease and more.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Healthcare providers, patients, and caregivers engage with video-based education on\u00a0Medlive, generating insights, data, and outcomes that drive the ongoing creation of patient-centered education with\u00a0meaningful\u00a0impact on clinical practice. The\u00a0Medlive\u00a0partner network has empowered millions of learners, allowing them to keep pace with the latest healthcare discoveries and improving health outcomes for all. Visit our\u202f<\/span><a href=\"https:\/\/edge.prnewswire.com\/c\/link\/?t=0&amp;l=en&amp;o=4587901-1&amp;h=1342630725&amp;u=https%3A%2F%2Fcme.medlive.com%2Fabout%2F&amp;a=About+Us\" target=\"_blank\" rel=\"noopener nofollow\"><b><span data-contrast=\"none\">About Us<\/span><\/b><\/a><span data-contrast=\"none\">\u202fpage for more information.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:278}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{}\"><strong> Media contact:\u00a0\u00a0<\/strong><br \/>\nCheryl Herbert<br \/>\nVice President, Marketing &amp; Communications<br \/>\n<a href=\"mailto:media@rarediseases.org\" target=\"_blank\" rel=\"noopener\">media@rarediseases.org<\/a><br \/>\n<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Nationwide initiative encourages health-care providers to boost rare-disease knowledge and early diagnosis\u00a0\u00a0 BOSTON and NORWELL,\u00a0Mass., FEB 23, 2026\u00a0&#8211;\u00a0In recognition of Rare Disease Day, the National Organization for Rare Disorders (NORD\u00ae) &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/earn-your-stripes-nord-launches-rare-disease-day-cme-challenge-to-close-critical-gaps-in-rare-disease-education\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Earn Your Stripes: NORD Launches Rare Disease Day\u00ae CME Challenge to Close Critical Gaps in Rare Disease Education&#8221;<\/span><\/a><\/p>\n","protected":false},"author":37,"featured_media":282769,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[4311,190,4070,4364],"tags":[],"class_list":["post-287854","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education","category-featured-news","category-partnerships","category-press-releases"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/287854","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/37"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=287854"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/287854\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/282769"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=287854"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=287854"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=287854"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}