{"id":290649,"date":"2026-05-21T14:01:40","date_gmt":"2026-05-21T18:01:40","guid":{"rendered":"https:\/\/rarediseases.org\/?p=290649"},"modified":"2026-06-25T10:58:58","modified_gmt":"2026-06-25T14:58:58","slug":"recap-nord-living-rare-living-stronger-in-arizona","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/recap-nord-living-rare-living-stronger-in-arizona\/","title":{"rendered":"Recap: NORD Living Rare, Living Stronger in Arizona"},"content":{"rendered":"

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Since 2019, the National Organization for Rare Disorders (NORD\u00ae<\/sup>) Living Rare, Living Stronger\u00ae<\/sup> Patient & Family Forum<\/a> has convened rare disease patients, families, caregivers, and experts to form lasting, impactful connections. This year, we are hosting three forums tailored to the rare community in each state where the events are being held.<\/p>\n

We kicked off the first of our 2026 Living Rare, Living Stronger forums on May 8 at Grand Canyon University in Phoenix, Arizona, where more than 115 rare patients, family members, clinicians, and allies gathered for a day of learning and relationship building.<\/p>\n

Improving Your Rare Disease Care<\/h2>\n

Living Rare, Living Stronger is about providing our community with resources and connections that will help improve their experience navigating life with a rare disease. At NORD, we are guided by the belief that “Alone we are rare. Together we are strong.”\u00ae<\/sup> Our first panel of the day, \u201cInnovative Approaches to Improving Your Rare Disease Care\u201d discussed opportunities for patients, clinicians, and researchers to collaborate and move the needle for the entire community.<\/p>\n