{"id":290827,"date":"2026-06-03T14:09:38","date_gmt":"2026-06-03T18:09:38","guid":{"rendered":"https:\/\/rarediseases.org\/?p=290827"},"modified":"2026-06-04T08:57:04","modified_gmt":"2026-06-04T12:57:04","slug":"nord-joins-coalition-of-48-patient-advocacy-organizations-expressing-concerns-over-coverage-loss-under-final-cms-medicaid-work-requirement","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-joins-coalition-of-48-patient-advocacy-organizations-expressing-concerns-over-coverage-loss-under-final-cms-medicaid-work-requirement\/","title":{"rendered":"NORD Joins Coalition of 48 Patient Advocacy Organizations Expressing Concerns Over Coverage Loss Under Final CMS Medicaid Work Requirement"},"content":{"rendered":"

Washington, D.C. \u2014 (June 3, 2026)<\/strong>\u00a0 Yesterday 48 non-profit, non-partisan patient organizations issued a statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions in Public Law 119-21.<\/p>\n

\"\"<\/p>\n

\u201cThroughout the legislative process, lawmakers repeatedly promised that the patients we represent would not be harmed by the policies that terminate Medicaid coverage for millions of in Public Law 119-21. Our organizations are deeply concerned the interim final rule does not protect people with serious or complex health conditions and would instead dramatically and inappropriately increase the number of people who will lose their healthcare coverage.\u201d<\/p>\n

\u201cRedefining the law\u2019s medical frailty exemption to only apply to individuals who can prove they cannot work and drastically limiting the ability of states to accept self-attestation from patients about compliance and exemptions starting in 2028 clearly conflicts with the law. These policies will place massive paperwork burdens on patients and providers, upend months of planning by states and create chaos just months away from the January 2027 implementation deadline.\u201d<\/p>\n

\u201cWhile it is impossible to fully shield patients from the impact of the devastating cuts coming to the Medicaid program, our groups are committed to working with federal and state policymakers throughout the implementation process to set policies that protect access to Medicaid<\/a><\/strong>. We urge CMS to adopt a definition of medical frailty and processes to document compliance that protect patients and are consistent with the law.\u201d<\/p>\n

###<\/p>\n

\n
AiArthritis<\/div>\n
Immune Deficiency Foundation<\/div>\n
Alpha-1 Foundation<\/div>\n
Legal Action Center<\/div>\n
ALS Association<\/div>\n
Lupus Foundation of America<\/div>\n
American Cancer Society Cancer Action Network<\/div>\n
Lutheran Services in America<\/div>\n
American Heart Association<\/div>\n
March of Dimes<\/div>\n
American Kidney Fund<\/div>\n
Muscular Dystrophy Association<\/div>\n
American Liver Foundation<\/div>\n
National Alliance on Mental Illness<\/div>\n
American Lung Association<\/div>\n
National Bleeding Disorders Foundation<\/div>\n
Arthritis Foundation<\/div>\n
National Health Council<\/div>\n
Asthma and Allergy Foundation of America<\/div>\n
National Kidney Foundation<\/div>\n
Autoimmune Association<\/div>\n
National Multiple Sclerosis Society<\/div>\n
Blood Cancer United<\/div>\n
National Organization for Rare Disorders<\/div>\n
CancerCare<\/div>\n
National Patient Advocate Foundation<\/div>\n
Cancer Nation<\/div>\n
National Psoriasis Foundation<\/div>\n
Cancer Support Community<\/div>\n
Parkinson\u2019s Foundation<\/div>\n
Crohn’s & Colitis Foundation<\/div>\n
Pulmonary Hypertension Association<\/div>\n
Cystic Fibrosis Foundation<\/div>\n
Sickle Cell Disease Association of America, Inc.<\/div>\n
Diabetes Patient Advocacy Coalition<\/div>\n
Susan G. Komen<\/div>\n
Epilepsy Foundation of America<\/div>\n
The AIDS Institute<\/div>\n
EveryLife Foundation for Rare Diseases<\/div>\n
The Coalition for Hemophilia B<\/div>\n
Family Voices National<\/div>\n
UsAgainstAlzheimer’s<\/div>\n
Foundation for Sarcoidosis Research (FSR)<\/div>\n
Volunteers of America<\/div>\n
Hemophilia Federation of America<\/div>\n
WomenHeart<\/div>\n
Hypertrophic Cardiomyopathy Association<\/div>\n
ZERO Prostate Cancer<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Washington, D.C. \u2014 (June 3, 2026)\u00a0 Yesterday 48 non-profit, non-partisan patient organizations issued a statement in response to the interim final rule implementing the new Medicaid work reporting requirement provisions … <\/p>\n

Continue reading “NORD Joins Coalition of 48 Patient Advocacy Organizations Expressing Concerns Over Coverage Loss Under Final CMS Medicaid Work Requirement”<\/span><\/a><\/p>\n","protected":false},"author":37,"featured_media":290861,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,3879,4364],"tags":[],"class_list":["post-290827","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-medical-affairs","category-press-releases"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/290827","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/37"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=290827"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/290827\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/290861"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=290827"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=290827"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=290827"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}