{"id":58552,"date":"2015-02-16T20:38:19","date_gmt":"2015-02-17T01:38:19","guid":{"rendered":"https:\/\/rarediseases.org\/join-nord-to-celebrate-rare-disease-day\/"},"modified":"2015-02-16T20:38:19","modified_gmt":"2015-02-17T01:38:19","slug":"join-nord-to-celebrate-rare-disease-day","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/join-nord-to-celebrate-rare-disease-day\/","title":{"rendered":"Join NORD to Celebrate Rare Disease Day"},"content":{"rendered":"
In celebration of Rare Disease Day, NORD is excited to host a special event for the rare disease community that includes a screening of the new documentary, \u201cBanner on the Moon,\u201d about Cindy Abbott and narrated by Valerie Harper.<\/p>\n

Join us in D.C. for a reception and to see this inspiring story about love and determination. \u00a0Space is limited –\u00a0RSVP<\/a>\u00a0to reserve your tickets today!<\/p>\n

Thursday, February 26, 2015 |\u00a02:00 \u2013 5:00 p.m.
\nNational Press Club |\u00a0529 14th Street, NW,\u00a013th Floor |Washington, D.C. 20045<\/strong><\/p>\n<\/address>\n

\u00a0<\/address>\n
*This is a free event and space is limited.\u00a0Shuttle service will be provided.\u00a0Lunch and movie snacks will be served.\u00a0Additional details provided on registration page.*<\/em><\/address>\n
\u00a0<\/address>\n

About the documentary<\/strong><\/p>\n

After being diagnosed with a rare disease, Cindy Abbott challenges herself to become the first woman to summit Mount Everest and complete the 1,000-mile Alaskan Iditarod.\u00a0 As part of a quest to raise rare disease awareness, she documents her journey and carries a special banner along the way.\u00a0 The result is a story of tenacity and hope.<\/p>\n

\u201cBanner on the Moon\u201d follows Cindy from the beginning, as she and her family seek the cause for her many alarming and debilitating symptoms, to her diagnosis at the age of 48, after 14 excruciating years of doctors and tests. \u00a0After being told she has a life-threatening illness called Wegener\u2019s granulomatosis, she is determined to continue living life to the fullest and sets out on a remarkable journey, challenging herself to overcome one difficult feat after another.<\/p>\n

\n

An emotional and inspiring feature-length documentary film narrated by Golden Globe\u00ae & 4-time Emmy\u00ae Award Winner Valerie Harper.<\/p>\n

This special preview of Banner on the Moon is sponsored by the National Organization for Rare Disorders (NORD)\u00ae for its partners in the rare disease community in celebration of\u00a0Rare Disease Day<\/a>\u00a02015. \u00a0Since 1983, NORD has been improving the lives of all people affected by rare diseases and those seeking to help them with programs of education, advocacy, research and patient\/family services. Join us online at\u00a0rarediseases.org\/<\/a>\u00a0and on Twitter\u00a0@rarediseases<\/a>\u00a0and\u00a0@RareDayUS<\/a>.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

In celebration of Rare Disease Day, NORD is excited to host a special event for the rare disease community that includes a screening of the new documentary, \u201cBanner on the … <\/p>\n

Continue reading “Join NORD to Celebrate Rare Disease Day”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":11787,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[1],"tags":[519,518,520,219],"class_list":["post-58552","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-banner-on-the-moon","tag-cindy-abbott","tag-documentary","tag-rare-disease-day"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58552","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58552"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58552\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/11787"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58552"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58552"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58552"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}