{"id":58558,"date":"2015-04-13T21:19:46","date_gmt":"2015-04-14T01:19:46","guid":{"rendered":"https:\/\/rarediseases.org\/announcing-the-2015-portraits-of-courage-honorees\/"},"modified":"2022-12-01T11:43:41","modified_gmt":"2022-12-01T16:43:41","slug":"announcing-the-2015-portraits-of-courage-honorees","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/announcing-the-2015-portraits-of-courage-honorees\/","title":{"rendered":"Announcing the 2015 Portraits of Courage Honorees"},"content":{"rendered":"
\"2015<\/a>
2015 Portraits of Courage Gala<\/figcaption><\/figure>\n

On May 19, on one of the rare disease community\u2019s biggest nights, we will honor the patients, leaders and innovators who are moving the community forward at NORD\u2019s annual Portraits of Courage Gala in Washington, D.C. \u00a0More than 500 guests are expected to attend. \u00a0Register here<\/a>.<\/p>\n

The 2015 honorees include:<\/p>\n

Abbey S. Meyers Leadership Award
\n<\/strong>The International Pemphigus & Pemphigoid Foundation<\/p>\n

Industry Innovation Award<\/strong>
\nBioMarin Pharmaceutical Inc. \u2013 Vimizim (Mucopolysaccharidosis Type IVA, also known as Morquio A Syndrome)
\nBOEHRINGER-INGELHEIM Corporation USA \u2013 Ofev (Idiopathic Pulmonary Fibrosis)
\nGenzyme Corporation \u2013 Cerdelga (Gaucher Disease Type I)
\nLundbeck \u2013 Northera (Neurogenic Orthostatic Hypotension)
\nNovartis Pharmaceuticals \u2013 Zykadia (Anaplastic Lymphoma Kinase-Positive Metastatic Non-Small Cell Lung Cancer)
\nVanda Pharmaceuticals Inc. \u2013 Hetlioz (Non-24-Hour Sleep-Wake Disorder)<\/p>\n

Lifetime Achievement Award<\/strong>
\nFrancis S. Collins, M.D., Ph.D. \u2013 Director, National Institutes of Health<\/p>\n

National Health Leadership Award<\/strong>
\nThe Honorable\u00a0Lamar Alexander (TN),\u00a0U.S. Senate
\nThe Honorable\u00a0Robert Casey, Jr. (PA)\u00a0U.S. Senate<\/p>\n

Portraits of Courage Honorees<\/strong>
\nDevin Alvarez (Sprengel\u2019s Deformity)
\nEmily Argersinger (Sturge-Weber Syndrome)
\nLaura Crandall (Sudden Unexplained Death in Childhood)
\nAnthony Ferrandino (Batten Disease)
\nBailey Gribben (Neurofibromatosis)
\nSophia Hanson (Lymphedema Praecox)
\nSavannah Hollis (Cavernous Angioma)
\nGlenn and Cara O\u2019Neill (Sanfilippo Syndrome Type A)
\nYusuf Patel (Methyl Melonic Acidemia)
\nLori Sames (Giant Axonal Neuropathy)<\/p>\n

Rare Disease Public Awareness Award<\/strong>
\nCindy Abbott (Wegener\u2019s Granulomatosis)<\/p>\n

Special Recognition<\/strong>
\nMargaret A. Hamburg, M.D. \u2013 Former Commissioner, Food and Drug Administration<\/p>\n

In addition to a cocktail reception, silent auction and seated dinner, the 2015 Portraits of Courage Gala will feature a post-event champagne and dessert celebration and musical performance by singer-songwriter Sonia Lee.<\/p>\n

This is NORD\u2019s biggest fundraising event of the year and all proceeds support our mission of providing education, advocacy, patient support and research for the 30 million Americans with rare diseases.<\/p>\n

To learn more, register for tickets, or for sponsorship opportunities, please visit\u00a0https:\/\/rarediseases.org\/news-events\/gala-2015. \u00a0See you there!<\/p>\n

– See more at: https:\/\/blog.rarediseases.org\/announcing-the-2015-portraits-of-courage-honorees\/#sthash.ICPtUNTv.dpuf<\/p>\n","protected":false},"excerpt":{"rendered":"

On May 19, on one of the rare disease community\u2019s biggest nights, we will honor the patients, leaders and innovators who are moving the community forward at NORD\u2019s annual Portraits … <\/p>\n

Continue reading “Announcing the 2015 Portraits of Courage Honorees”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":11803,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[1],"tags":[537,539,540,544,324,541,542,377,538,543],"class_list":["post-58558","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-nordgala15","tag-biomarin","tag-boehringer-ingelheim","tag-dr-francis-s-collins","tag-genzyme","tag-lundbeck","tag-novartis","tag-portraits-of-courage","tag-portraits-of-courage-honorees","tag-vanda"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58558","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58558"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58558\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/11803"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58558"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58558"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58558"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}