{"id":58618,"date":"2015-08-14T21:49:23","date_gmt":"2015-08-15T01:49:23","guid":{"rendered":"https:\/\/rarediseases.org\/advocating-for-rare-disease-patients-at-the-nih\/"},"modified":"2015-08-14T21:49:23","modified_gmt":"2015-08-15T01:49:23","slug":"advocating-for-rare-disease-patients-at-the-nih","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/advocating-for-rare-disease-patients-at-the-nih\/","title":{"rendered":"Advocating for Rare Disease Patients at the NIH"},"content":{"rendered":"<p><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/08\/nihMasterLogo.png\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\" title=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-21625\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/08\/nihMasterLogo-300x188.png\" alt=\"NIH Master Logo\" width=\"300\" height=\"188\" \/><\/a>NORD was glad to have the opportunity to submit comments to the <a href=\"https:\/\/www.nih.gov\/\" target=\"_blank\" rel=\"noopener nofollow\">National Institutes of Health (NIH)<\/a>\u00a0for its Strategic Plan, where we talked about the importance of programs for rare diseases, especially those for undiagnosed patients that have the potential to solve the medical mysteries that plague millions of undiagnosed patients and their families. \u00a0Read our comments <a href=\"https:\/\/rarediseases.org\/assets\/files\/policy-statements\/2015-08-14.NORD-Comments-on-Request-for-Information-(RFI)-Inviting-Comments-and-Suggestions-on-a-Framework-for-the-NIH-wide-Strategic-Plan.pdf\" target=\"_blank\" rel=\"noopener\">here<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>NORD was glad to have the opportunity to submit comments to the National Institutes of Health (NIH)\u00a0for its Strategic Plan, where we talked about the importance of programs for rare &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/advocating-for-rare-disease-patients-at-the-nih\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> \u00abAdvocating for Rare Disease Patients at the NIH\u00bb<\/span><\/a><\/p>\n","protected":false},"author":47,"featured_media":11950,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232],"tags":[692,265,690,691,693,267,694],"class_list":["post-58618","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","tag-national-center-for-advancing-translational-sciences-ncats","tag-nih","tag-office-of-rare-diseases-research-ordr","tag-rare-diseases-clinical-research-network-rdcrn","tag-therapeutics-for-rare-and-neglected-diseases-trnd","tag-undiagnosed","tag-undiagnosed-diseases-program-upd"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58618","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58618"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58618\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/11950"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58618"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58618"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58618"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}