{"id":58676,"date":"2015-10-12T14:56:20","date_gmt":"2015-10-12T18:56:20","guid":{"rendered":"https:\/\/rarediseases.org\/raise-your-voice-rare-disease-day-2016-is-coming\/"},"modified":"2022-12-01T11:56:58","modified_gmt":"2022-12-01T16:56:58","slug":"raise-your-voice-rare-disease-day-2016-is-coming","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/raise-your-voice-rare-disease-day-2016-is-coming\/","title":{"rendered":"Raise Your Voice: Rare Disease Day 2016 is Coming"},"content":{"rendered":"<p style=\"text-align: center;\"><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/10\/Tammie-Hefty-edited.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\" title=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-23102 size-medium aligncenter\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/10\/Tammie-Hefty-edited-300x300.jpg\" alt=\"Rare Disease Day Handprints Across America\" width=\"300\" height=\"300\" \/><\/a><\/p>\n<p style=\"text-align: center;\"><strong>Date:<\/strong> February 29, 2016<br \/>\n<strong>Global Theme:<\/strong> Patient Voice<br \/>\n<strong>Global Slogan:<\/strong> Join us in making the voice of rare diseases heard<\/p>\n<p>By definition, each rare disease affects a small segment of the population, yet combined the 7,000 known rare diseases affect 30 million people &#8211; that is 1 in 10 of us. Many Americans do not realize how common rare diseases are and that our community has tremendous unmet medical needs. On February 29, join together to raise your voice and make the voice of rare diseases heard.<\/p>\n<p>Start planning&#8230;<\/p>\n<ul>\n<li><a href=\"https:\/\/rarediseaseday.us\/take-action-now\/become-a-partner\/\" target=\"_blank\" rel=\"noopener nofollow\">Sign up<\/a>\u00a0to be a Rare Disease Day Partner and receive official updates (individuals and organizations welcome)<\/li>\n<li>Share your plans and photos with the worldwide hashtag <a href=\"https:\/\/twitter.com\/search?q=%23rarediseaseday&amp;src=typd\" target=\"_blank\" rel=\"noopener nofollow\">#RareDiseaseDay<\/a><\/li>\n<li>Request a Rare Disease Day <a href=\"https:\/\/rarediseaseday.us\/wp-content\/uploads\/2011\/11\/NORD-Proclamation-Guide-Oct-2015.pdf\" target=\"_blank\" rel=\"noopener nofollow\">proclamation<\/a>\u00a0from your elected officials<\/li>\n<li>Support <a href=\"https:\/\/rarediseaseday.us\/events\/state-house\/\" target=\"_blank\" rel=\"noopener nofollow\">State House Events<\/a>\u00a0by signing up to participate in your state or with a donation &#8211; let&#8217;s make sure patients in every state have a voice this year<\/li>\n<li>Incorporate Rare Disease Day into <a href=\"https:\/\/rarediseases.org\/get-involved\/educate\/educational-initiatives\/for-students\/\" target=\"_blank\" rel=\"noopener\">school<\/a>\u00a0settings for students of all ages, from kindergarten to medical school<\/li>\n<li>Partner with a local <a href=\"https:\/\/rarediseaseday.us\/take-action-now\/suggested-activities\/#sthash.BFITIGHE.dpuf\" target=\"_blank\" rel=\"noopener nofollow\">hospital<\/a>\u00a0to set up an awareness display in the lobby<\/li>\n<li>Get excited by <a href=\"https:\/\/www.youtube.com\/watch?v=r0vpEwcM8rM&amp;feature=youtu.be\" target=\"_blank\" rel=\"noopener nofollow\">reliving<\/a>\u00a0what we accomplished together in 2015<\/li>\n<\/ul>\n<p>Questions? Planning an event? We want to hear from you! Contact us via email at <a href=\"mailto:rdd-us@rarediseases.org\" target=\"_blank\" rel=\"noopener\">rdd-us@rarediseases.org<\/a>.<\/p>\n<p>NORD is the official U.S. sponsor and host of Rare Disease Day. Learn what this means\u00a0and about what we <a href=\"https:\/\/rarediseases.org\/about\/what-we-do\/programs-services\/\" target=\"_blank\" rel=\"noopener\">do<\/a>. \u00a0\u00a0Join us in spreading hope and understanding today by raising your hand to support everyone touched by rare diseases. \u00a0Thank you for your support!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Date: February 29, 2016 Global Theme: Patient Voice Global Slogan: Join us in making the voice of rare diseases heard By definition, each rare disease affects a small segment of &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/raise-your-voice-rare-disease-day-2016-is-coming\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Raise Your Voice: Rare Disease Day 2016 is Coming&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12093,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,503,190,662,210,191,192,505,193],"tags":[219,905],"class_list":["post-58676","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-events","category-featured-news","category-get-involved","category-industry","category-medical","category-patients-members","category-patient-stories","category-research","tag-rare-disease-day","tag-state-house-events"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58676","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58676"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58676\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12093"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58676"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58676"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58676"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}