{"id":58680,"date":"2015-09-08T18:30:22","date_gmt":"2015-09-08T22:30:22","guid":{"rendered":"https:\/\/rarediseases.org\/rare-disease-artists-work-traveling-globe-to-raise-awareness\/"},"modified":"2015-09-08T18:30:22","modified_gmt":"2015-09-08T22:30:22","slug":"rare-disease-artists-work-traveling-globe-to-raise-awareness","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/rare-disease-artists-work-traveling-globe-to-raise-awareness\/","title":{"rendered":"Rare Disease Artists\u2019 Work Traveling Globe to Raise Awareness"},"content":{"rendered":"<p><a href=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/09\/cystinosis.jpg\" data-rel=\"lightbox-image-0\" data-rl_title=\"\" data-rl_caption=\"\" title=\"\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-23191 size-full\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/09\/cystinosis.jpg\" alt=\"cystinosis\" width=\"401\" height=\"220\" \/><\/a>The Cystinosis Research Network (CRN), a 501(c)(3)\u00a0charitable organization and NORD member, created the first-ever \u201cDream, Achieve, Inspire\u201d art exhibit prepared\u00a0entirely by patients with cystinosis, a rare, genetic-metabolic disease. Paintings, poems,\u00a0sculptures, dance, and photography from 107 individuals with cystinosis covering 30 countries\u00a0came together under Exhibit Chairperson, Katie Larimore.<\/p>\n<p>The art exhibit opened in Chicago at the July 2015 CRN Family Conference. The result was a\u00a0record-breaking 340 attendees, the largest turn out in conference history. The Chicago debut of\u00a0the \u201cDream, Achieve, Inspire\u201d collection kicked off a world tour for the art pieces. Mrs.\u00a0Larimore has booked the exhibit for cystinosis gatherings in Mexico, Brazil, and Europe with\u00a0more destinations being added. The goal is to showcase the talent of the cystinosis community\u00a0and raise awareness about cystinosis.<\/p>\n<p>For information on how to view the artwork, donate, volunteer, or become part of the Cystinosis\u00a0Research Network, visit <a href=\"https:\/\/www.cystinosis.org\" target=\"_blank\" rel=\"noopener nofollow\">www.cystinosis.org<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Cystinosis Research Network (CRN), a 501(c)(3)\u00a0charitable organization and NORD member, created the first-ever \u201cDream, Achieve, Inspire\u201d art exhibit prepared\u00a0entirely by patients with cystinosis, a rare, genetic-metabolic disease. Paintings, poems,\u00a0sculptures, &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/rare-disease-artists-work-traveling-globe-to-raise-awareness\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> \u00abRare Disease Artists\u2019 Work Traveling Globe to Raise Awareness\u00bb<\/span><\/a><\/p>\n","protected":false},"author":47,"featured_media":12104,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[503,192],"tags":[914,916,912,913,915,917],"class_list":["post-58680","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","category-patients-members","tag-art-exhibit","tag-crn-family-conference","tag-cystinosis","tag-cystinosis-research-network","tag-katie-larimore","tag-nord-member-organization"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58680"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58680\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12104"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58680"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}