A Short Walk Home<\/a>” was published June 30, 2015. My chance to help those\u00a0facing a similar plight. In that I have spent fifteen years helping others through the foundation, this\u00a0appeared natural. As I write this, the book has been out two weeks. A close friend, an actor,\u00a0appeared on two national morning news shows and advocated my book. One of the more humbling\u00a0things that has happened in my life. My hope is to reach the masses. Not just for ALD but for all rare\u00a0disorders. The challenges we all face are unending. More awareness must certainly mean more results.<\/p>\nToday, we are almost whole again. Frankly, stronger than we were before. All of the stress\u00a0of a dying child lifted through his passing, no matter how much better we become, we will never\u00a0forget. As Logan was just 14 when he died, I now see it as crucial to honor him by helping to forge\u00a0his legacy. I speak about him daily with anyone who will listen. I see him in his mother\u2019s eyes. Hear\u00a0him in his brother\u2019s voice. I pray about him every night. Gone now, he will always be here.<\/p>\n
Decide to love. Allow it to carry you. Hold tight to anyone who means anything to you. In the\u00a0end, love will allow healing.<\/p>\n","protected":false},"excerpt":{"rendered":"
By David Cry, Guest Blogger Courage. Strength in the face of pain or grief. A tenet I have experienced on many occasions as the lead of The Adrenoleukodystrophy (ALD) Foundation. … <\/p>\n
Continue reading “Guest Blog: A Parent Advocate & Author Discusses Courage”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12108,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[505],"tags":[920,922,921,919,351,278,923],"class_list":["post-58682","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","tag-a-short-walk-home","tag-ald","tag-book","tag-david-cry","tag-guest-blog","tag-guest-blogger","tag-the-adrenoleukodystrophy-ald-foundation"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58682","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58682"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58682\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12108"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58682"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58682"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58682"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
![\"David](\"https:\/\/rarediseases.org\/wp-content\/uploads\/2015\/12\/David-Cry-300x159.jpg\")
Courage. Strength in the face of pain or grief. A tenet I have experienced on many occasions as the lead of The Adrenoleukodystrophy (ALD) Foundation. I have heard it in the words of mothers\u00a0whose sons have been diagnosed with this fatal illness. Witnessed it in the tears of fathers who\u00a0knew that maintaining in spite of incredibly negative odds was the only way. I saw it first hand in\u00a0the eyes of my wife Jaymee. Three days post our son Logan\u2019s fatal diagnosis. I then saw it every day,\u00a0in the nurturing manner she loved him and our non- affected younger son Brennan. Courage. Not\u00a0often relied on. Having now lost a child to a rare disorder, I can spot courage from a mile away.<\/p>\n