{"id":58698,"date":"2016-03-02T21:05:53","date_gmt":"2016-03-03T02:05:53","guid":{"rendered":"https:\/\/rarediseases.org\/nord-founder-publishes-memoir-detailing-her-tireless-work-as-parent-advocate\/"},"modified":"2016-03-02T21:05:53","modified_gmt":"2016-03-03T02:05:53","slug":"nord-founder-publishes-memoir-detailing-her-tireless-work-as-parent-advocate","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-founder-publishes-memoir-detailing-her-tireless-work-as-parent-advocate\/","title":{"rendered":"NORD Founder Publishes Memoir Detailing Her Tireless Work as Parent-Advocate"},"content":{"rendered":"<p><a href=\"https:\/\/rarediseases.org\/nord-founder-publishes-memoir\/cover-oprhan-drugs-book\/\" rel=\"attachment wp-att-24258\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-24258\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2016\/03\/cover-oprhan-drugs-book.png\" alt=\"cover-oprhan-drugs-book\" width=\"150\" height=\"198\" \/><\/a>\u00ab<em>One day, I wish everyone dealing with a rare condition will have access to a treatment. I really hope you will enjoy reading these memories\u2026 and learn more about this Global Crusade.\u00bb\u00a0<\/em>&#8211; Abbey Meyers<\/p>\n<p>In her new memoir, <em>Orphan Drugs: A Global Crusade<\/em>, NORD founder Abbey Meyers\u00a0shares\u00a0her\u00a0lifetime experience as a parent and tireless advocate for people affected by rare diseases. \u00a0In the book, she\u00a0documents the issues that led to enactment of the \u201cOrphan Drug Act of 1983\u201d (ODA), and the extraordinary scientific and industrial progress that ensued, including the development of Orphan\u00a0Drug legislation in other industrialized countries around the world. \u00a0Abbey\u00a0is considered the primary American consumer advocate responsible for passage of the ODA and her book\u00a0walks readers through her fight to invoke change in this underserved space.<\/p>\n<p>For more information or to order the paperback book from Amazon, please visit: <a href=\"https:\/\/www.abbeysmeyers.com\/\" target=\"_blank\" rel=\"noopener nofollow\">www.AbbeySMeyers.com<\/a>.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00abOne day, I wish everyone dealing with a rare condition will have access to a treatment. I really hope you will enjoy reading these memories\u2026 and learn more about this &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-founder-publishes-memoir-detailing-her-tireless-work-as-parent-advocate\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> \u00abNORD Founder Publishes Memoir Detailing Her Tireless Work as Parent-Advocate\u00bb<\/span><\/a><\/p>\n","protected":false},"author":47,"featured_media":12141,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,190],"tags":[982,262],"class_list":["post-58698","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-featured-news","tag-abbey-meyers","tag-orphan-drug-act"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58698","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58698"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58698\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12141"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58698"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58698"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58698"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}