{"id":58705,"date":"2016-04-07T14:07:09","date_gmt":"2016-04-07T18:07:09","guid":{"rendered":"https:\/\/rarediseases.org\/introducing-the-2016-rare-disease-day-highlights-video\/"},"modified":"2016-04-07T14:07:09","modified_gmt":"2016-04-07T18:07:09","slug":"introducing-the-2016-rare-disease-day-highlights-video","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/introducing-the-2016-rare-disease-day-highlights-video\/","title":{"rendered":"Introducing the 2016 Rare Disease Day\u00ae  Highlights Video"},"content":{"rendered":"<div>\n<p>Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day<b>\u00ae<\/b>. \u00a0This is the one day that everyone comes together globally to bring attention to all 7,000 rare diseases that combined affect 30 million Americans&#8211;or 1 in 10 of us&#8211;and millions more around the world.\u00a0NORD is proud to be the U.S. sponsor of Rare Disease Day to help raise awareness and spread the word about rare diseases.\u00a0Without partners and supporters like you, Rare Disease Day would not be this successful.\u00a0Thank you for your support, thank you for helping us heighten awareness, and hopefully every Rare Disease Day will lead us toward more cures. \u00a0Thank you all for your support.<\/p>\n<hr \/>\n<\/div>\n<div>\n<div><\/div>\n<div>Now that Rare Disease Day 2016 events have\u00a0finished and\u00a0the numbers are in,\u00a0let\u2019s celebrate everything we accomplished together to make the voice of rare diseases heard. \u00a0Take a look at (and share!) this year&#8217;s\u00a0<a href=\"https:\/\/youtu.be\/T_h9WZjjZH0\" rel=\"nofollow noopener\" target=\"_blank\">highlight reel &amp; recap.<\/a><\/div>\n<div><\/div>\n<\/div>\n<div><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/T_h9WZjjZH0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/div>\n<div>\n<ul>\n<li>Together, we planned and hosted <strong>37<\/strong> State House Events across the U.S., up from last year&#8217;s 32 State House Events<\/li>\n<li>Advocates in all <strong>50<\/strong> states worked to get a state-issued proclamation for &#8220;Rare Disease Day&#8221;<\/li>\n<li>The Senate passed a resolution declaring Feb. 29, 2016 &#8220;Rare Disease Day&#8221;<\/li>\n<li>Hundreds of advocates convened at the National Institutes of Health and in Washington, D.C. to advance progress for rare diseases<\/li>\n<li>More than <strong>2,100<\/strong> people and <strong>279<\/strong> state legislators &amp; staff attended the State House Events, which featured participants from\u00a0<b>202<\/b>\u00a0organizations,\u00a0<b>197<\/b>\u00a0patient &amp; caregiver speakers,\u00a0<b>81<\/b>\u00a0state legislative speakers, and\u00a0<b>26<\/b>\u00a0medical professional &amp; industry speakers<\/li>\n<li>#RareDiseaseDay: we achieved greater awareness through\u00a0social media by working together to make the official, global hashtag trend\u00a0on Twitter for the first time and\u00a0on Facebook\u00a0for the second year in a row<\/li>\n<li><strong>4,000+<\/strong> people shared photos and stories in the Handprints Across America\u00ae\u00a0campaign<\/li>\n<li>The official, global\u00a0video was translated into\u00a0<b>20+<\/b>\u00a0languages<\/li>\n<li><b>85+<\/b>\u00a0countries joined in solidarity with\u00a0Rare\u00a0Disease\u00a0Day\u00a0founder, EURORDIS, to make the voice of\u00a0rare\u00a0diseases\u00a0heard, including\u00a0first time participants Andorra, Aruba, Indonesia, Libya, Mauritius, Moldova, Tanzania, Tunisia, Uganda and Zimbabwe<\/li>\n<\/ul>\n<div style=\"text-align: center;\"><em>We will not stop fighting for the 30 million Americans who are living with rare disease. In 2017, our efforts will be louder and stronger!\u00a0We need your help! <\/em><\/div>\n<div style=\"text-align: center;\"><\/div>\n<div style=\"text-align: center;\"><strong><em>Tell us what you hope to accomplish in 2017, <a href=\"https:\/\/www.rarediseaseday.us\/plan-ahead-2017\/\" data-link-type=\"web\" rel=\"nofollow noopener\" target=\"_blank\">sign up<\/a> to receive news and updates, <\/em><\/strong><\/div>\n<div style=\"text-align: center;\"><strong><em>and start planning today!\u00a0<\/em><\/strong><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day\u00ae. \u00a0This is the one day that everyone comes together globally to &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/introducing-the-2016-rare-disease-day-highlights-video\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Introducing the 2016 Rare Disease Day\u00ae  Highlights Video&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[503,190,662,210],"tags":[1045,971,1043,1046,265,953,219,1044],"class_list":["post-58705","post","type-post","status-publish","format-standard","hentry","category-events","category-featured-news","category-get-involved","category-industry","tag-1045","tag-handprints-across-america","tag-highlights-video","tag-national-institues-of-health","tag-nih","tag-patient-voice","tag-rare-disease-day","tag-recap"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58705","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58705"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58705\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58705"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58705"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58705"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}