{"id":58726,"date":"2016-05-25T20:56:36","date_gmt":"2016-05-26T00:56:36","guid":{"rendered":"https:\/\/rarediseases.org\/nord-hosts-tweetchat-with-texas-childrens-hospital-on-navigating-the-pediatric-er-may-26\/"},"modified":"2016-05-25T20:56:36","modified_gmt":"2016-05-26T00:56:36","slug":"nord-hosts-tweetchat-with-texas-childrens-hospital-on-navigating-the-pediatric-er-may-26","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-hosts-tweetchat-with-texas-childrens-hospital-on-navigating-the-pediatric-er-may-26\/","title":{"rendered":"NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)"},"content":{"rendered":"\n\n\n
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May 26, 2016<\/span><\/span>
\n1:00 – 2:00 p.m. EDT<\/span><\/span><\/b><\/p>\n

\"#RareERChatNORD\"<\/p>\n<\/div>\n

A trip to the emergency room with a rare disorder can present challenges. For one, \u00a0few members of the ER staff may be familiar with your condition or how to treat you.<\/p>\n

Given that more than half of the 30 million Americans with rare diseases are children,\u00a0NORD<\/span> and Texas Children’s Hospital are working together to co-host\u00a0a\u00a0tweetchat\u00a0on the topic of navigating the pediatric ER with a rare disease.<\/p>\n

Mary Dunkle<\/b>, VP of Educational Initiatives at NORD<\/span>, and Dr. Katherine Leaming, Pediatric Emergency Room Physician at Texas Children’s Hospital, will be tweeting from @RareDiseases and @TexasChildrens, to ask and answer questions.<\/p>\n

Join<\/span> us! \u00a0The\u00a0tweetchat\u00a0is an opportunity for patients, families, physicians and the rare disease community to come together, and connect with resources.<\/p>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n\n\n
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Help Promote the\u00a0Tweetchat<\/b>
\nWe invite you to share this information through Facebook, Twitter, LinkedIn, newsletters, email blasts or any other communications channels you use. Everyone can participate. The only thing you need to participate is an active Twitter account.<\/p>\n

How to Participate in the\u00a0Tweetchat<\/b><\/p>\n

<\/i>Join<\/span> the\u00a0tweetchat by signing in to your active Twitter account. \u00a0Enter into the\u00a0tweetchat\u00a0at 12:45 p.m. EST<\/span><\/span> on May 26 from the Twitter management tool that you prefer. Join<\/span> at #RareERChat. \u00a0Once you are signed in, you are welcome to\u00a0tweet\u00a0comments, facts, images and videos as often as you like.<\/p>\n

Remember to use the hashtag #RareERChat in all your tweets! Doing so will make your tweets a part of the actual\u00a0chat with Mary Dunkle and Dr. Katherine Leaming.<\/p>\n

When responding to a question, include the letter “A” followed by the number of the question.
\nExample Question 1:\u00a0<\/i>How many rare diseases are there? #RareERChat
\nExample Response 1: A<\/i>1: There are approximately 7,000 rare diseases\u00a0#RareERChat.<\/p>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n","protected":false},"excerpt":{"rendered":"

May 26, 2016 1:00 – 2:00 p.m. EDT A trip to the emergency room with a rare disorder can present challenges. For one, \u00a0few members of the ER staff may … <\/p>\n

Continue reading “NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12205,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[662,191,192],"tags":[1132,1136,869,1134,261,1133,1137,315,1135],"class_list":["post-58726","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-get-involved","category-medical","category-patients-members","tag-rareerchat","tag-dr-katherine-leaming","tag-educational-initiatives","tag-er-with-a-rare-disease","tag-mary-dunkle","tag-navigating-the-pediatric-er","tag-pediatric-er","tag-rare-disease","tag-texas-childrens-hospital"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58726","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58726"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58726\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12205"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58726"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58726"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58726"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}