{"id":58740,"date":"2016-06-28T16:35:26","date_gmt":"2016-06-28T20:35:26","guid":{"rendered":"https:\/\/rarediseases.org\/nord-in-the-news-financial-times-highlights-nords-training-and-advice-for-family-foundations\/"},"modified":"2016-06-28T16:35:26","modified_gmt":"2016-06-28T20:35:26","slug":"nord-in-the-news-financial-times-highlights-nords-training-and-advice-for-family-foundations","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-in-the-news-financial-times-highlights-nords-training-and-advice-for-family-foundations\/","title":{"rendered":"NORD in the News: Financial Times Highlights NORD&#8217;s Training and Advice for Family Foundations"},"content":{"rendered":"<p><a href=\"https:\/\/rarediseases.org\/nord-research-program-featured-financial-times\/financialtimes-2\/\" rel=\"attachment wp-att-26974\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-full wp-image-26974\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2016\/06\/financialtimes-1.png\" alt=\"financialtimes\" width=\"200\" height=\"201\" \/><\/a>A recent article in the Financial Times (June 24, 2016) looked at the growing impact families have on medical research. \u00a0According to the Center of Strategic Philanthropy at the Milken Institute, family foundations provide approximately 3 percent of all medical research funding in the U.S. \u00a0Families also\u00a0help bridge gaps in the understanding of diseases, such as with <a href=\"https:\/\/rarediseases.org\/for-patient-organizations\/ways-partner\/patient-registries\/\" target=\"_blank\" rel=\"noopener\">natural history studies<\/a>, and they also raise awareness of diseases.<\/p>\n<p>The article examined\u00a0how it is not always easy to become engaged in medical research, as &#8220;families need to get up to speed on complex science and the latest research. Then there is setting up the foundation where, in addition to the normal incorporation processes, they need to make sure their board of advisers has the right skills and knowledge.&#8221;<\/p>\n<p>The article highlighted\u00a0NORD for its work as a nonprofit to help families take these steps, offering &#8220;training, mentoring and advice on everything from establishing a fundraising strategy and building a website to creating a scientific advisory board.&#8221;<\/p>\n<p><a href=\"https:\/\/next.ft.com\/content\/57c46446-2d51-11e6-bf8d-26294ad519fc\" target=\"_blank\" rel=\"noopener nofollow\">Read<\/a> the full article.<\/p>\n<p style=\"text-align: center;\"><em>You can help\u00a0support NORD&#8217;s mission with\u00a0a <a href=\"https:\/\/salsa3.salsalabs.com\/o\/51076\/donate_page\/news-donate\" target=\"_blank\" rel=\"noopener nofollow\">donation<\/a>\u00a0today. \u00a0NORD is an independent 501(c)(3) charitable organization.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A recent article in the Financial Times (June 24, 2016) looked at the growing impact families have on medical research. \u00a0According to the Center of Strategic Philanthropy at the Milken &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-in-the-news-financial-times-highlights-nords-training-and-advice-for-family-foundations\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD in the News: Financial Times Highlights NORD&#8217;s Training and Advice for Family Foundations&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":12220,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[1],"tags":[1173,1174,925,524,633],"class_list":["post-58740","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-financial-times","tag-milken-institute","tag-natural-history-studies","tag-nord-in-the-news","tag-nord-research-grant-program"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58740","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58740"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58740\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12220"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58740"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58740"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58740"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}