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![\"Kate](\"https:\/\/rarediseases.org\/wp-content\/uploads\/2016\/09\/kate-bartlett-running-for-rare-225x300.jpg\")
Hey all! First of all, thank you for taking the time to give me a few minutes of your time to discuss my marathon training and my Community Partner, Tara Notrica. My name is Kaitlin Bartlett, I\u2019m 29 years old and grew up in\u00a0Syracuse, NY. Syracuse is home to the\u00a0Orange, the brutal winters, and the best place to witness\u00a0fall foliage! My running journey began in the Spring of 2011 when my now fianc\u00e9 convinced me to sign up for the Mountain Goat run(10 miles) in Syracuse. I told him he was crazy and he\u2019d never get me to run the whole thing. Believe me when I tell you, I hated running. I couldn\u2019t believe people ran for fun.\u00a0I complained about the heat, the distance and anything you could think of when we\u2019d go out for our training runs. Just ask him, I was not the most positive person to be around. (Thank goodness he still wants to marry me!) At this time, all I could connect running to was high school soccer practice when we\u2019d run 3 miles BEFORE<\/strong> practice even started. I was very bitter about it.<\/p>\n Flash forward to Spring 2012 when I signed up for my first half marathon in New York City. I entered the lottery, not expecting to get chosen, but as luck would have it, I was accepted! I finished my first half marathon in 2 hours and 6 minutes<\/strong> and have a lifetime of memories running through Central Park, Times Square, the Westside Highway and Battery Park. To date, I\u2019ve completed two NYC Half Marathons and they get\u00a0better year after year.<\/p>\n At this point, I was addicted to running. Is this the feeling people craved? Is this what a runners high felt like? I couldn\u2019t believe I was turning into one of those people who loved running for fun. The sense of accomplishment you feel when crossing the finish line is something I crave every time my feet hit the pavement. It\u2019s amazing what setting a few goals and reaching those goals can do to you. Although, I have to admit, I almost lost the willingness to run another half marathon after the recent Syracuse Half Marathon in April 2016. The race conditions were unlike any I\u2019ve ever faced before. If you\u2019re not familiar with the\u00a0Syracuse weather, it\u2019s possible it will snow until Mother\u2019s Day<\/a>! On Sunday April 3rd, I woke up to those very same conditions: a white out, 24 degrees, 35 mile per hour winds and a\u00a0windchill that made it feel like 8 degrees outside.\u00a0The snow whipped\u00a0sideways across the course, and about 40 minutes into the race, the snow thickened to a full-on white out. Then, around mile 4 it started to hail. Road conditions were covered in snow and ice and after several attempts of\u00a0saving myself from eating the pavement, I swore I would never run again. That was it. I was done.<\/p>\n <\/p>\n In May 2016, I came across NORD\u2019s website<\/a> when I was doing research for my friend Heather Von St. James<\/a> who was diagnosed with mesothelioma, 3 1\/2 months after giving birth to her only daughter, Lily. My co-worker Gia and I discussed the opportunity to sign up to run on behalf of the\u00a0Running for Rare team. I had flashbacks of the Syracuse Half Marathon and the possibility of snow in NYC in November and said NO way. I\u2019ve finished every half marathon I\u2019ve ran and said to myself, \u201cthere is no way I could turn around and do this again and complete a full marathon.\u201d I decided to fill out the form and throw my name in the hat because that\u2019s who I am.\u00a0After having a few discussions with Phil Maderia, I was convinced I could do this and all for a great cause. I signed up for the marathon training program with our local Fleet Feet store and started training at the end of June.<\/p><\/blockquote>\n In the meantime, I was connected with my Community Partner, Tara Notrica<\/a>, who I\u2019d be running the NYC Marathon on behalf of. Let me tell you, Tara is a blessing.<\/p>\n Tara has participated in the Community Partner program for the past 3 years and has watched it grown tremendously.\u00a0Tara is\u00a0married to Barry, and has 2 children,\u00a0Jared (16) and Samantha (12) and lives right outside of New York City. Tara has\u00a0been battling Mast Cell Disease for 10 years, also known as the Nasty Masties by patients. It has completely altered\u00a0her life.\u00a0Tara\u2019s health journey began in her early 20s when she would have yearly episodes of facial swelling, hives, vomiting, and constriction of airways. At that time, doctors thought she was having severe allergic reactions and would prescribe over the counter medication.\u00a0Countless visits to doctors and specialists over the next five years would result in diagnoses of alopecia, lupus, rheumatoid arthritis, Lyme disease, and other autoimmune disorders. However, as treatments for each of these were unsuccessful, Tara and her family couldn\u2019t help but feel hopeless. Her condition was not improving; she was loosing muscle mass, and at one point weighed less than 100 pounds.\u00a0On April 1, 2011, Tara was finally diagnosed correctly with a disease in which she suffered from every symptom. That disease \u2013 mast cell activation disorder<\/a> is a disorder caused by a genetic mutation that results in an excessive number of mast cells in your body. Mast cells are \u201cmaster regulators\u201d of the immune system. They come from bone marrow and go into all tissues of the body. She had a stem cell transplant using her own cells in July 2015 and unfortunately, it failed. She is back on a targeted form of chemo and is convincing her doctors for a bone marrow transplant.<\/p>\n For the last 5 years, Tara has worked\u00a0tirelessly on passing a NYS piece of legislation<\/a> related to the provision of school bus transportation for children of sick parents or guardians. This has been her\u00a0focus this year\u00a0and unfortunately it did not pass in mid-June. Tara will continue to push forward and use her voice in hopes that some day this bill get passed and signed into law. Tara has a beautiful soul and an infectious personality. She remains positive in light of her disease and I am so happy our paths crossed! I can\u2019t wait to cross the finish line on November 6th and give Tara a huge hug!<\/p>\n I will continue to update on marathon training but as of this morning, I completed a 12 mile run with the Fleet Feet team and have a 14 mile run next Sunday! Enjoy the rest of your Sunday, everyone. To donate\u00a0to the Running for Rare team, visit my fundraising page<\/a>.<\/p>\n This blog post was originally shared on the Running for Rare website<\/a> by Kate Bartlett, a member of the Running for Rare team. To read more stories about the runners and Rare Community Partners participating in Running for Rare, NORD’s charity marathon team, follow the team on Facebook<\/a> and Twitter<\/a>\u00a0and visit this page on our website.<\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":" Written By: Kate Bartlett \u00abI came across NORD\u2019s website when I was doing research for my friend Heather Von St. James who was diagnosed with mesothelioma,\u00a03 1\/2 months after giving … <\/p>\n![\"Tara](\"https:\/\/rarediseases.org\/wp-content\/uploads\/2016\/09\/tara-kate-bartlett-running-for-rare-community-partner-225x300.jpg\")
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