{"id":58808,"date":"2017-02-09T21:02:56","date_gmt":"2017-02-10T02:02:56","guid":{"rendered":"https:\/\/rarediseases.org\/join-nord-and-abc-news-for-a-rare-disease-day-tweetchat-on-feb-28\/"},"modified":"2022-12-02T08:11:50","modified_gmt":"2022-12-02T13:11:50","slug":"join-nord-and-abc-news-for-a-rare-disease-day-tweetchat-on-feb-28","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/join-nord-and-abc-news-for-a-rare-disease-day-tweetchat-on-feb-28\/","title":{"rendered":"Join NORD and ABC News for a Rare Disease Day\u00ae Tweetchat on Feb. 28"},"content":{"rendered":"<div>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-30300 size-medium\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2017\/02\/NRD-1057-ABC_RDD_Tweetchat_v2-300x113.png\" alt=\"NRD-1057 ABC_RDD_Tweetchat_v2\" width=\"300\" height=\"113\" \/><\/p>\n<p>In celebration of\u00a0<b><a href=\"https:\/\/rarediseaseday.us\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GzUPPwRYwIN0iG-U6yzPqD1cDsJbX4ip6Yq17Dhou3IpSCzVjf9Cxh5fewx7hPBtW3MCp1hvb35y0lRPQYeI4rbpoHHzyk8JVB9fSPK8D870pSbouFREDhY2n5tirxmVWhc1lySvPJ7CkoQRYuTT9U4rOQMYcYLO7A%3D%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392366000&amp;usg=AFQjCNEJvBCFNVfPMnmLqGcBT-gHhAxQJQ\" rel=\"noopener nofollow\">Rare Disease Day\u00ae<\/a>,<\/b>\u00a0NORD will co-host a\u00a0tweetchat\u00a0on the topic of rare diseases with\u00a0<b>Dr. Richard Besser<\/b>, Chief of the\u00a0ABC\u00a0News Medical\/Health Unit. \u00a0The tweetchat will take place on Tuesday, Feb. 28, 2017 at 1:00 p.m. EST.<\/p>\n<\/div>\n<p>This is the fourth annual tweetchat that ABC News and NORD, the U.S. host of Rare Disease Day, are co-hosting together. \u00a0We are pleased to present this\u00a0year&#8217;s chat in collaboration with\u00a0<strong>Medscape<\/strong>, the\u00a0leading online destination for physicians and healthcare professionals worldwide.<\/p>\n<p>Join us!\u00a0\u00a0The tweetchat\u00a0is an opportunity for patients, experts,\u00a0doctors, the rare disease community and public to come together on Rare Disease Day, ask questions, get answers, and raise important awareness.<\/p>\n<p>NORD will be live-tweeting from @RareDiseases<b><\/b>\u00a0and @RareDayUS<b><\/b>\u00a0(a Twitter feed dedicated to Rare Disease Day) with\u00a0<b>Marsha Lanes<\/b>, MS, CGC, NORD\u2019s Genetic Counselor &amp; Medical Editor, answering your questions. \u00a0Dr. Besser will join and moderate the chat from @abcdrbchat. \u00a0Medscape will join\u00a0from @Medscape.<\/p>\n<p>We look forward to having you participate as we work together to bring widespread recognition to rare diseases and\u00a0the 30 million Americans who battle them.<\/p>\n<div class=\"m_-7506599240312744712gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"m_-7506599240312744712editor-text m_-7506599240312744712article-heading-text\" align=\"left\">Tweetchat Coordinates<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"m_-7506599240312744712gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"m_-7506599240312744712editor-text m_-7506599240312744712article-text\" align=\"left\">\n<div><b>When:\u00a0<\/b><span class=\"aBn\" tabindex=\"0\" data-term=\"goog_875995699\"><span class=\"aQJ\">Tues, Feb. 28<\/span><\/span>,\u00a0<span class=\"aBn\" tabindex=\"0\" data-term=\"goog_875995700\"><span class=\"aQJ\">1-2 p.m. EST<\/span><\/span><br \/>\n<b>Tweetchat\u00a0Hashtag:\u00a0\u00a0<\/b><a href=\"https:\/\/twitter.com\/hashtag\/abcdrbchat\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDj8IzumDKpzJ7KhdOGEl2ah-tA_ScjaZvVm17rrJ6VssnDf05MH9wHKddejDaUbxX3Pn0Kf-AGw6VxSqUCFL9L23TiVsx9KDvCg8ddC-AFjHM%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392366000&amp;usg=AFQjCNGlQFjz6qRCNKpRKD97B4knQRQHHw\" rel=\"noopener nofollow\">#<wbr \/>abcDRBchat<\/a><br \/>\n<b>Tweetchat\u00a0Moderator:\u00a0<\/b><a href=\"https:\/\/twitter.com\/abcdrbchat\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDjODslAxpwKw5WqEYvayXkvgys5-oFbOq2r3ckho7Iq6Y9MvjalN3It8ozMlEJ4GkgojHsK1EmYhitfNdn-1_NdZXDlLYFkeVY%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392366000&amp;usg=AFQjCNFdATaUO7o_CmE-mUe4aPNmj6SmBQ\" rel=\"noopener nofollow\">@<wbr \/>abcdrbchat<\/a><br \/>\n<b>Dr. Richard Besser:\u00a0<\/b><a href=\"https:\/\/twitter.com\/DrRichardBesser\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDjJqpA_TD6iLSIQdFrEva9czH8hT4ErrguVLOaIXk0C1rW0QXH9AKSBwoVU9pq_zdPhQQcMitKIrj_DpempU5-dlbWKbph3vrkAvIyzMxxs6o%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392366000&amp;usg=AFQjCNGOVIjiD929BODn_Khfu1_yTByJsQ\" rel=\"noopener nofollow\">@DrRichardBesser<\/a><br \/>\n<b>NORD:<\/b>\u00a0<a href=\"https:\/\/twitter.com\/rarediseases\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDjt9HUvtdsd5G18x89nD3nXhOEG3v70mvkl4xwZtCkKhuok29qtPFJMN5TPfYKhHxBH6kMK6_ZQMt0RP1s0ZWRTLAZA-0Hzg-RVACtHPQjoyUVwTXCvzMeWRzYzMwlzti3dFJdqJbCIvU%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392366000&amp;usg=AFQjCNHYL0ujJHShDjEJQt8kJJoCzp5pyg\" rel=\"noopener nofollow\">@RareDiseases<\/a>,\u00a0<a href=\"https:\/\/twitter.com\/RareDayUS\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDjqJQpk_9ZtodP0Qtm3yxHkOk3u3si-eo7RIGjO0xKktg4aAo3tAk403V8qX6csKWQaGsLPzw2vEsf02uRl7DpSl2ZDdFUbRteui3DMz52X6C21vgkgrhPQ8Ww3ZX8NoHAwXST1C3Q6k8%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392367000&amp;usg=AFQjCNFuFXmUbUckcMKsFfrV_5eEdY5q-A\" rel=\"noopener nofollow\">@<wbr \/>RareDayUS<\/a><\/div>\n<div>Medscape:\u00a0<a href=\"https:\/\/twitter.com\/Medscape\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GzUPPwRYwIN01BAtlMk1qkHgXjeUuzqMZA-IDyGNgFTTq1GiTRqUF4Jnx0ZA8hjIcxHwzJo9opn27C72D_x5ZLODsq3sdi5f_cSWWV92T6Ff%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392367000&amp;usg=AFQjCNEd1xWCgeqAWUN0bobY83PPQMXh5g\" rel=\"noopener nofollow\">@Medscape<\/a><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<p><b>Help Promote the\u00a0Tweetchat<\/b><br \/>\nWe invite you to share this information through Facebook, Twitter, LinkedIn, newsletters, email blasts or any other communications channels you use.<\/p>\n<p><b>How to Participate in the\u00a0Tweetchat<\/b><\/p>\n<p><i><\/i>Join the\u00a0tweetchat by signing in to\u00a0your active Twitter account. \u00a0Enter into the\u00a0tweetchat\u00a0at\u00a0<span 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Join at\u00a0<a href=\"https:\/\/r20.rs6.net\/tn.jsp?f=001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDj8IzumDKpzJ7KhdOGEl2ah-tA_ScjaZvVm17rrJ6VssnDf05MH9wHKddejDaUbxX3Pn0Kf-AGw6VxSqUCFL9L23TiVsx9KDvCg8ddC-AFjHM=&amp;c=G9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ==&amp;ch=qPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w==\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDj8IzumDKpzJ7KhdOGEl2ah-tA_ScjaZvVm17rrJ6VssnDf05MH9wHKddejDaUbxX3Pn0Kf-AGw6VxSqUCFL9L23TiVsx9KDvCg8ddC-AFjHM%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392367000&amp;usg=AFQjCNFxMyYXqtLtH8AL_7B5u2bGz-0kXg\" rel=\"noopener nofollow\">#abcDRBchat<\/a>. \u00a0Once you are signed in, you are welcome to\u00a0tweet\u00a0comments, facts, images and videos as often as you like.<\/p>\n<p>Remember to use the hashtag\u00a0<a href=\"https:\/\/r20.rs6.net\/tn.jsp?f=001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDj8IzumDKpzJ7KhdOGEl2ah-tA_ScjaZvVm17rrJ6VssnDf05MH9wHKddejDaUbxX3Pn0Kf-AGw6VxSqUCFL9L23TiVsx9KDvCg8ddC-AFjHM=&amp;c=G9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ==&amp;ch=qPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w==\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6GwDgLCzuWtDj8IzumDKpzJ7KhdOGEl2ah-tA_ScjaZvVm17rrJ6VssnDf05MH9wHKddejDaUbxX3Pn0Kf-AGw6VxSqUCFL9L23TiVsx9KDvCg8ddC-AFjHM%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392367000&amp;usg=AFQjCNFxMyYXqtLtH8AL_7B5u2bGz-0kXg\" rel=\"noopener nofollow\">#abcDRBchat<\/a>\u00a0in all your tweets! Doing so will make your tweets a part of the actual\u00a0chat.<\/p>\n<p>When responding to a question, include the letter \u00abT\u00bb followed by the number of the question.<br \/>\n<i>Example Question 1:\u00a0<\/i>Q1:\u00a0How many rare diseases are there?<br \/>\n<i>Example Response 1:\u00a0<\/i>T1: There are approximately 7,000 rare diseases\u00a0#abcDRBchat.<\/p>\n<p><b>Keep the Conversation Going<\/b><\/p>\n<p>After the\u00a0tweetchat, you can continue the conversation using\u00a0<b><a href=\"https:\/\/twitter.com\/hashtag\/rarediseaseday\" target=\"_blank\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=https:\/\/r20.rs6.net\/tn.jsp?f%3D001j59dxecNTVAsciqjvgDP3VbX5zRjk0C2RakiqAdj-3K8uBTjL1V6G81IYCBXmIfWcJnrhqJzydXNCtRlWAqohyZuRu0ZQz6Bwxwce6vqGi1I3rJEY_fvN8elmk6gk6EVOouz-lc9VGh6te64HAVA_V5ZIFo13JyoyYYShBPyQDQFxvD9iXYQiA%3D%3D%26c%3DG9ika1LMtMEaOrxteKZhKUfCAPLIl7M1EmNIAjLK7rkYeI8-FuPCWQ%3D%3D%26ch%3DqPHOnOtQvjhAPLHzXotJaP2bXyO4XqSp3_Yb1tTUGqiKK0ebEvom3w%3D%3D&amp;source=gmail&amp;ust=1486754392367000&amp;usg=AFQjCNFpwBVXEI5ipfkG_rJcWK4J6SDJeQ\" rel=\"noopener nofollow\">#RareDiseaseDay<\/a><\/b>, the official, global hashtag being used\u00a0in the U.S. and around the world.\u00a0 See you on Twitter!<\/p>\n<p style=\"text-align: center;\"><em>Learn more about events and activities happening in the U.S. for Rare Disease Day by visiting <a href=\"https:\/\/rarediseaseday.us\" rel=\"nofollow noopener\" target=\"_blank\">rarediseaseday.us<\/a>. \u00a0You can also visit the official global website at <a href=\"https:\/\/www.rarediseaseday.org\" target=\"_blank\" rel=\"noopener nofollow\">www.rarediseaseday.org<\/a>.<\/em><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>In celebration of\u00a0Rare Disease Day\u00ae,\u00a0NORD will co-host a\u00a0tweetchat\u00a0on the topic of rare diseases with\u00a0Dr. Richard Besser, Chief of the\u00a0ABC\u00a0News Medical\/Health Unit. \u00a0The tweetchat will take place on Tuesday, Feb. 28, &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/join-nord-and-abc-news-for-a-rare-disease-day-tweetchat-on-feb-28\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> \u00abJoin NORD and ABC News for a Rare Disease Day\u00ae Tweetchat on Feb. 28\u00bb<\/span><\/a><\/p>\n","protected":false},"author":47,"featured_media":12361,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[503,190,662],"tags":[944,1375,208,795,219,943],"class_list":["post-58808","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","category-featured-news","category-get-involved","tag-abc-news","tag-barb-calhoun","tag-marsha-lanes","tag-medscape","tag-rare-disease-day","tag-tweetchat"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58808","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58808"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58808\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12361"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58808"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58808"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58808"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}