{"id":58820,"date":"2017-03-27T19:29:37","date_gmt":"2017-03-27T23:29:37","guid":{"rendered":"https:\/\/rarediseases.org\/nord-and-neurology-reviews-publish-special-report\/"},"modified":"2017-03-27T19:29:37","modified_gmt":"2017-03-27T23:29:37","slug":"nord-and-neurology-reviews-publish-special-report","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/nord-and-neurology-reviews-publish-special-report\/","title":{"rendered":"NORD and Neurology Reviews Publish Special Report"},"content":{"rendered":"<p>As part of its efforts to educate medical professionals about rare diseases, NORD, the leading independent nonprofit representing the 30 million Americans with rare diseases, is pleased to announce publication of the 3rd annual <a href=\"https:\/\/rarediseases.org\/get-involved\/educate\/educational-initiatives\/for-medical-professionals\/\" target=\"_blank\" rel=\"noopener\">Rare Neurological Disease Special Report\u2122<\/a>, with Neurology Reviews\u00ae, a Frontline Medical Communications (FMC) print and digital media publication.<\/p>\n<p>Published as a supplement to the March issue of Neurology Reviews\u00ae, the 2017 Rare Neurological Disease Special Report\u2122 is the most extensive to date. VP\/Group Editor Glenn Williams highlighted this year\u2019s coverage, which includes cannabinoids\u2019 efficacy in rare pediatric epilepsies, new and potential therapies for neuromuscular disorders, and the clinical therapeutic potential of gene therapy; and, he acknowledged contributions from the Keck Graduate Institute, the Child Neurology Foundation, and the LGS Foundation (Lennox-Gastaut Syndrome). In addition, the Hereditary Neuropathy Foundation presented results from the inaugural Patient-Centered Charcot-Marie-Tooth (CMT) Summit, emphasizing the importance of patient-reported outcomes data, patient registries\/networks, and underscoring the barriers to proper diagnosis, disease management, and treatment options, including gaps in standards of care guidelines.<\/p>\n<p>The report also features an interview with Ronald J. DeBillis, PharmD, Chief Scientific Officer at NORD, on the topic of telemedicine and its benefits for patients, providers and health care institutions.<\/p>\n<p style=\"text-align: center;\"><em>Learn about NORD&#8217;s other resources for medical professionals <a href=\"https:\/\/rarediseases.org\/get-involved\/educate\/educational-initiatives\/for-medical-professionals\/\" target=\"_blank\" rel=\"noopener\">here<\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>As part of its efforts to educate medical professionals about rare diseases, NORD, the leading independent nonprofit representing the 30 million Americans with rare diseases, is pleased to announce publication &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/rarediseases.org\/es\/nord-and-neurology-reviews-publish-special-report\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;NORD and Neurology Reviews Publish Special Report&#8221;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[504,1],"tags":[1471,1057,1470,871,965,1468,1472,1469,1474,1473,966],"class_list":["post-58820","post","type-post","status-publish","format-standard","hentry","category-press-releases","category-uncategorized","tag-grants","tag-hereditary-neuropathy-foundation","tag-iamrare","tag-keck-graduate-institute","tag-neurology-reviews","tag-patient-perspective","tag-patient-centered","tag-product-review","tag-quincy-m-e","tag-rare-diseases-orphan-products-breakthrough-summit","tag-rare-neurological-disease-special-report"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58820","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58820"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58820\/revisions"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58820"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58820"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58820"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}