{"id":58856,"date":"2017-08-15T13:49:59","date_gmt":"2017-08-15T17:49:59","guid":{"rendered":"https:\/\/rarediseases.org\/advance-the-dialogue-at-the-nord-rare-summit\/"},"modified":"2017-08-15T13:49:59","modified_gmt":"2017-08-15T17:49:59","slug":"advance-the-dialogue-at-the-nord-rare-summit","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/advance-the-dialogue-at-the-nord-rare-summit\/","title":{"rendered":"Advance the Dialogue at the NORD Rare Summit"},"content":{"rendered":"

It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I\u2019m sure you are aware; the conversation isn\u2019t over yet.\u00a0Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare disease stakeholders come together to advance the\u00a0dialogue<\/span>\u00a0on these and other emerging issues, policies and strategies that will affect the environment for rare diseases and orphan products.<\/p>\n

That is why I am urging you to attend NORD\u2019s 2017\u00a0Rare Diseases and Orphan Products Breakthrough Summit<\/a>\u00a0this\u00a0October 16-17<\/span><\/span>\u00a0in Washington, D.C.
\nWhy attend?
\n<\/b>Creating a culture of conversation, education, and engagement around the debate in our nation’s healthcare system, the NORD Rare Summit is the place for YOU to interact with leaders from the FDA, NIH, patient advocacy groups, medical professionals, the orphan product industry and your colleagues. At NORD, we value your personal and professional insights and participation to help establish an inclusive environment of meaningful inspiration and collaboration.
\nThe keynotes
\n<\/b>As you may have read, this year\u2019s event will feature parent advocate, award-winning journalist, and founder\/CEO of\u00a0The Mighty<\/i>, Mike Porath; and the new Commissioner of the Food and Drug Administration, Dr. Scott Gottlieb. The keynotes are a pinnacle example of the viewpoints and topics that will be discussed at the summit this year.
\nWhat else can you expect?
\n<\/b>NORD, our members, our sponsors and you continue to play an integral role in advocating for the rare disease patient community. In support of our mutual commitment, we are proud to present:<\/p>\n