{"id":58858,"date":"2017-08-23T14:40:22","date_gmt":"2017-08-23T18:40:22","guid":{"rendered":"https:\/\/rarediseases.org\/recap-nih-ncats-day-partnering-with-patients-for-smarter-science-at-the-nih\/"},"modified":"2017-08-23T14:40:22","modified_gmt":"2017-08-23T18:40:22","slug":"recap-nih-ncats-day-partnering-with-patients-for-smarter-science-at-the-nih","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/recap-nih-ncats-day-partnering-with-patients-for-smarter-science-at-the-nih\/","title":{"rendered":"Recap: NIH NCATS Day – Partnering with Patients for Smarter Science at the NIH"},"content":{"rendered":"

In advance of today’s Members-Only Webinar<\/a> with the Director of NIH NCATS, Dr. Christopher Austin, Swapna\u00a0Kakani, a summer intern with NORD, wrote the article below highlighting her experience in June at the NIH NCATS Day – Partnering with Patients for Smarter Science. We look forward to today’s special webinar with our network of Member Organizations to continue the conversation on the importance of NCATS for the rare disease community.<\/em><\/p>\n

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On June 30, I attended the <\/span>NIH NCATS Day – Partnering with Patients for Smarter Science <\/span><\/i>at the NIH campus in Bethesda, MD. NCATS stands for the National Center for Advancing Translational Sciences. It is one of the 27 institutes at the National Institutes of Health (NIH) and was started in 2012. This event was a first of its kind for NCATS, but definitely not the last! \u00a0<\/span><\/p>\n

The goal of the day was to explain the programs and initiatives under NCATS, current collaborations between NCATS and patient foundations, and most importantly for NCATS staff to be a listening ear on how they can partner with patients moving forward. <\/span>The director of NCATS, Dr. Christopher Austin, explained the NCATS approach to translational science and the genuine desire for NCATS to have more patient engagement within each of their programs. <\/span>From the start of the event, the patient was made the focus of every presentation. The NCATS team <\/span>and<\/span><\/i> Dr. Austin were a part of each session, actively taking notes. A NCATS researcher said, \u201cPatients are the only source we can get disease information from.\u201d I was very impressed by their focus on patients during this event.<\/span><\/p>\n

Each NCATS individual program is seeking a novel way to speed up the access to patient therapies from accelerating the steps required to go from bench to clinical trials, to being smarter about how we share a patient\u2019s medical data. Each program is providing opportunities for patient engagement! Details on each program can be found at <\/span>ncats.nih.gov\/programs<\/span><\/a>. <\/span><\/p>\n

The NCATS Programs and Initiatives: <\/span><\/p>\n