{"id":58867,"date":"2017-10-13T16:17:00","date_gmt":"2017-10-13T20:17:00","guid":{"rendered":"https:\/\/rarediseases.org\/registration-open\/"},"modified":"2017-10-13T16:17:00","modified_gmt":"2017-10-13T20:17:00","slug":"registration-open","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/registration-open\/","title":{"rendered":"Registration Open!"},"content":{"rendered":"<p><strong>Danbury, CT and Washington, D.C., October 13, 2017<\/strong>\u2014Do you know a person or company that is making a difference in the fight against rare diseases?\u00a0 Submit a nomination for the 2018 Rare Impact Awards by January 12: \u00a0<a href=\"https:\/\/rarediseases.org\/rare-impact-awards\" target=\"_blank\" rel=\"noopener\">rarediseases.org\/rare-impact-awards<\/a>.<\/p>\n<p>The Rare Impact Awards\u00a0celebrates\u00a0efforts to help the 30 million Americans with rare diseases who, by the very nature of their diagnoses, may be overlooked by traditional medicine, research and healthcare policies.\u00a0Awards are presented in May at the annual Gala Celebration and fundraiser, hosted by the National Organization for Rare Disorders (NORD)\u00ae, the leading independent advocacy organization representing all patients and families affected by rare diseases.<\/p>\n<p>\u201cWe are honored to bring together the community and supporters for this special event,\u201d said NORD president and CEO Peter L. Saltonstall. \u201cPeople who dedicate their lives to rare diseases must overcome obstacles to make a difference.\u00a0 We look forward to sharing their inspiring stories and renewing our shared commitment to further progress.\u201d<\/p>\n<p>In recognition of the 35<sup>th<\/sup> anniversaries of NORD and the Orphan Drug Act, the 2018 Rare Impact Awards will be given out in four categories that match the four pillars of the NORD\u2019s mission, with two awards issued in each category:<\/p>\n<ul>\n<li>Advocacy<\/li>\n<li>Education<\/li>\n<li>Research<\/li>\n<li>Patient Assistance<\/li>\n<\/ul>\n<p>A committee of NORD staff and Board of Directors will review the nominations and determine the winners, who will join the esteemed company of previous honorees that include patients, caregivers, patient advocacy groups, researchers, healthcare professionals, legislators, regulators, bioethicists and innovators.<\/p>\n<p>Winners will be recognized at the 2018 Rare Impact Awards Gala Celebration and fundraiser on May 17 in Washington, D.C.\u00a0 To learn more, visit <a href=\"https:\/\/rarediseases.org\/rare-impact-awards\">rareimpact.org\/awards<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Registration is now open for the 35th Anniversary Celebration Presenting the Rare Impact Awards.<\/p>\n","protected":false},"author":1,"featured_media":12435,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[503,504],"tags":[1392,262,243,930],"class_list":["post-58867","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","category-press-releases","tag-35th-anniversary","tag-orphan-drug-act","tag-peter-l-saltonstall","tag-rare-impact-awards"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58867","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58867"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58867\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12435"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58867"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58867"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58867"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}