{"id":58886,"date":"2017-12-21T15:05:33","date_gmt":"2017-12-21T20:05:33","guid":{"rendered":"https:\/\/rarediseases.org\/join-us-for-rare-disease-day\/"},"modified":"2017-12-21T15:05:33","modified_gmt":"2017-12-21T20:05:33","slug":"join-us-for-rare-disease-day","status":"publish","type":"post","link":"https:\/\/rarediseases.org\/es\/join-us-for-rare-disease-day\/","title":{"rendered":"Join Us for Rare Disease Day\u00ae"},"content":{"rendered":"<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-spacer\">\n<table class=\"editor-spacer\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"spacer-base\" align=\"center\" valign=\"top\" width=\"100%\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text editor-text \" align=\"left\" valign=\"top\">\n<div>\n<table class=\"editor-image OneColumnMobile\" border=\"0\" cellspacing=\"0\" cellpadding=\"0\" align=\"right\">\n<tbody>\n<tr>\n<td class=\"mobile-hidden\" align=\"center\" valign=\"top\" width=\"15\" height=\"1\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/sys\/S.gif\" alt=\"\" width=\"15\" height=\"1\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/td>\n<td class=\"image-cell \" align=\"center\" valign=\"top\">\n<div class=\"publish-container\"><img decoding=\"async\" class=\"\" src=\"https:\/\/files.constantcontact.com\/e0ab2096501\/8f628f47-99ae-4ebd-b597-63f6b226f270.jpg\" alt=\"\" width=\"175\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<tr>\n<td class=\"mobile-hidden\" align=\"center\" valign=\"top\" width=\"5\" height=\"5\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/sys\/S.gif\" alt=\"\" width=\"5\" height=\"1\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/td>\n<td class=\"mobile-hidden\" align=\"center\" valign=\"top\" height=\"5\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/sys\/S.gif\" alt=\"\" width=\"1\" height=\"5\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<div>Each year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day\u00ae (RDD), takes place on the\u00a0last day of February each year.\u00a0The next RDD will fall on February 28, 2018.<\/div>\n<div><\/div>\n<div>To make the largest impact possible, NORD is challenging each advocate to get involved in one way or another. Together, we can ensure that as many people as possible are aware of rare diseases and the issues that our community faces.<\/div>\n<div><\/div>\n<h4 style=\"text-align: center;\" align=\"center\"><strong>Will you join us?<\/strong><\/h4>\n<div><\/div>\n<div>Our website,\u00a0<a href=\"https:\/\/www.rarediseaseday.us\/\" target=\"_blank\" rel=\"noopener nofollow\">rarediseaseday.us<\/a>, is updated with plenty of resources to help you get involved including social media activities, downloadables, event ideas, links to register for events in your communities, and more!<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-divider\">\n<table class=\"editor-divider\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text editor-text \" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<h4 style=\"text-align: center;\" align=\"center\"><strong>Get Involved!<\/strong><\/h4>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"article editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"60%\">\n<div><strong>\u00a0<\/strong><\/div>\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text article-heading-text\" align=\"left\" valign=\"top\">\n<div><strong>\u00a0<\/strong><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<div><strong>NORD&#8217;s 7,000 Mile Rare Movement<\/strong><\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text article-text\" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>The 7,000 Mile Rare Movement is a new and exciting virtual campaign hosted by NORD as part of Rare Disease Day. The campaign challenges YOU to join other advocates in the rare disease community in seeking pledge dollars to walk, run or bike 7,000 miles collectively throughout the month of February. Proceeds from this campaign will go towards NORD&#8217;s programs and services.<\/div>\n<div><\/div>\n<div><a href=\"https:\/\/pledgeit.org\/give\/nord\" target=\"_blank\" rel=\"noopener nofollow\">Learn More.<\/a><\/div>\n<div><\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<td class=\"article editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"40%\">\n<div class=\"gl-contains-spacer\">\n<table class=\"editor-spacer\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"spacer-base\" align=\"center\" valign=\"top\" width=\"100%\">\n<div><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/1101116784221\/S.gif\" alt=\"\" width=\"5\" height=\"1\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"gl-contains-image\">\n<table class=\"editor-image content-image editor-image-vspace-on\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td align=\"center\" valign=\"top\">\n<div class=\"publish-container\"><img decoding=\"async\" class=\"\" src=\"https:\/\/files.constantcontact.com\/e0ab2096501\/ae8bf68b-8118-42e9-b613-bfd481f690a6.png\" alt=\"\" width=\"157\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"article editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"60%\">\n<div><\/div>\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text article-heading-text\" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<div><\/div>\n<div><strong>Rare Action Network\u2122\u00a0Advocacy Events<\/strong><\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text article-text\" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>NORD&#8217;s Rare Action Network, the nation&#8217;s largest advocacy network working to improve the lives of people living with rare diseases, hosts advocacy events across the United States. These events provide the opportunity for advocates to educate elected officials in their states about the issues that rare disease patients are facing. Events are already being planned by volunteers!<\/div>\n<div><\/div>\n<div><a href=\"https:\/\/rarediseaseday.us\/events\/advocacy-events\/\" target=\"_blank\" rel=\"noopener nofollow\">Learn More.<\/a><\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<td class=\"article editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"40%\">\n<div class=\"gl-contains-image\">\n<table class=\"editor-image content-image editor-image-vspace-on editor-image-hspace-on\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td align=\"right\" valign=\"top\">\n<div class=\"publish-container\"><img decoding=\"async\" class=\"\" src=\"https:\/\/files.constantcontact.com\/e0ab2096501\/0b49f1a1-7b11-40ea-9365-2f6d81b71afc.png\" alt=\"\" width=\"210\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-divider\">\n<table class=\"editor-divider\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"50%\"><\/td>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"50%\">\n<div class=\"gl-contains-spacer\">\n<table class=\"editor-spacer\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"spacer-base\" align=\"center\" valign=\"top\" width=\"100%\">\n<div><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/1101116784221\/S.gif\" alt=\"\" width=\"5\" height=\"1\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<div class=\"gl-contains-social-button\"><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text editor-text \" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<div align=\"center\">Did a friend forward you this email?\u00a0<a href=\"https:\/\/visitor.r20.constantcontact.com\/d.jsp?llr=oqofquvab&amp;p=oi&amp;m=1122748250638&amp;sit=bwaodfdkb&amp;f=edbae0a0-d9cf-4916-ba56-471a0edef648\" target=\"_blank\" rel=\"noopener nofollow\">Sign up to get\u00a0Rare Disease Day updates in your inbox!<\/a><\/div>\n<\/div>\n<div align=\"center\"><\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-divider\">\n<table class=\"editor-divider\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"two-column editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"75%\">\n<div><\/div>\n<div class=\"gl-contains-text\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"editor-text two-column-text\" align=\"left\" valign=\"top\">\n<div><\/div>\n<div class=\"text-container galileo-ap-content-editor\">\n<div>\n<div align=\"center\"><\/div>\n<div align=\"center\">Rare Disease Day\u00ae is sponsored and hosted in the U.S. by the\u00a0<a href=\"https:\/\/rarediseases.org\/?utm_source=rdd17_recap&amp;utm_medium=email\" target=\"_blank\" rel=\"noopener\">National Organization for Rare Disorders (NORD)<\/a>\u00ae.\u00a0NORD is a member of the National Alliances, a group of umbrella organizations that work with Rare Disease Day founder, EURORDIS, to organize and present\u00a0Rare Disease Day around the world.\u00a0Visit the global site\u00a0<a href=\"https:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener nofollow\">here<\/a>.<\/div>\n<\/div>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<td class=\"two-column editor-col OneColumnMobile\" align=\"left\" valign=\"top\" width=\"25%\">\n<div class=\"gl-contains-image\">\n<table class=\"editor-image content-image editor-image-vspace-on editor-image-hspace-on\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td align=\"right\" valign=\"top\">\n<div class=\"publish-container\"><img decoding=\"async\" class=\"\" src=\"https:\/\/files.constantcontact.com\/e0ab2096501\/c1d419bb-2193-473c-ab14-59048f0cd4a3.png\" alt=\"\" width=\"96\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table class=\"galileo-ap-layout-editor\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\" editor-col OneColumnMobile\" align=\"\" valign=\"top\" width=\"100%\">\n<div class=\"gl-contains-spacer\">\n<table class=\"editor-spacer\" border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"\" align=\"center\" valign=\"top\">\n<table border=\"0\" width=\"100%\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td class=\"spacer-base\" align=\"center\" valign=\"top\" width=\"100%\">\n<div><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/imgssl.constantcontact.com\/letters\/images\/1101116784221\/S.gif\" alt=\"\" width=\"5\" height=\"1\" border=\"0\" hspace=\"0\" vspace=\"0\" \/><\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n","protected":false},"excerpt":{"rendered":"<p>Learn how to get involved with the biggest day of the year for the rare disease community.<\/p>\n","protected":false},"author":1,"featured_media":12458,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[232,503,662],"tags":[1435,1434,1433,526,315,663,219],"class_list":["post-58886","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-events","category-get-involved","tag-000-mile-rare-movement","tag-1434","tag-advocacy-events","tag-rare-action-network","tag-rare-disease","tag-rare-disease-advocacy","tag-rare-disease-day"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58886","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/comments?post=58886"}],"version-history":[{"count":0,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/posts\/58886\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media\/12458"}],"wp:attachment":[{"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/media?parent=58886"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/categories?post=58886"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rarediseases.org\/es\/wp-json\/wp\/v2\/tags?post=58886"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}